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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

By A MyEpilepsyTeam Member 90 answers

What's A Common Misconception About Epilepsy?

By A MyEpilepsyTeam Member 304 answers

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 95 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyEpilepsyTeam Member 70 answers
12445 questions

Podcast On Epilepsy Includes The “history” Of The Disease!

A MyEpilepsyTeam Member asked a question 💭
Tulsa, OK

https://podcasts.apple.com/us/podcast/this-podc...(Phone number can only be seen by MyEpilepsyTeam users)?i(Phone number can only be seen by MyEpilepsyTeam users)

A MyEpilepsyTeam Member

Awesome, thanks!

March 7, 2023

Can Smells Be Triggers?

A MyEpilepsyTeam Member asked a question 💭
Fallon, NV

I'm just curious just about everything else. Can too me except smells.

A MyEpilepsyTeam Member

I think someone may have said their auras might include smells as well. They are not my triggers, but anything is possible.

Leslie

March 5, 2023

Would You Feel 'repulsed' If You Saw Me Have A Grand Mal (tonic Clonic, Generalised) Seizure?

A MyEpilepsyTeam Member asked a question 💭
Portlaoise, IE

Please feel free to respond honestly, I won't take offence.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member 10 years! Wow that is amazing!

March 2, 2023

Can You Post A Video Of Your Seizure?

A MyEpilepsyTeam Member asked a question 💭
London, UK

Hi ya! I think we should all post a video (if you have one) so we can see what each seizure looks like. I’ll start 😊

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member No way I haven’t done that no curtains swinging well yet if I do I will try to record it and post it. 🤷🏻‍♀️ All my seizures are different I walk as well but I never walked… read more

April 28, 2023

Does Anyone Else Fear Dying From A Seizures

A MyEpilepsyTeam Member asked a question 💭
Fallon, NV

I live alone and I have stopped breathing not too start on my own. So it something I really do fear.

A MyEpilepsyTeam Member

JackLaverty,
I'd love to hear that nontoxic marker story some day.

January 31, 2023

Has Anyone Woken In A Hospital To Be Asked Questions That Seem To Belittle You.

A MyEpilepsyTeam Member asked a question 💭
Fallon, NV

I was asked if I knew what planet I was on seriously asked this question. I wanted to be funny. But it came out as aggressive.

A MyEpilepsyTeam Member

Fortunately everyone at a hospital asked very polite questions. It was a Paul Blart Mall Cop type that was so rude to me. Him: Do you drugs? Me: Yes I do. Him: How frequently? Me : Everyday. It… read more

January 8 (edited)

Vaccine & Epilepsy

A MyEpilepsyTeam Member asked a question 💭
Centereach, NY

Has anyone gotten the vaccine? Do you feel it has made seizures worse? Have any of y'all heard of shedding? I know it's a touchy subject for a lot of people. Personally I am NOT vaxxed, nor will I be getting it. I am surrounded by people that are.

A MyEpilepsyTeam Member

I've had all the shots including the updated covid shots. Also all flu shots are up to date.
68 yrs old feeling good.
No problems

September 21, 2023

Loss Of Readiing

A MyEpilepsyTeam Member asked a question 💭
Garden City, MI

Has anyone noticed or is experiencing a hard time or loss of interest in reading for long? I find myself only able to read small news reports or a few paragraphs of anything before I just loose interest in reading any further. Retaining and able to share what I read is a really big problem! I also will be in the middle of a sentence or a thought and the words or the entire subject will just slip away and I don’t get it back. I’ll even be talking when the word or object is right there, I can see… read more

A MyEpilepsyTeam Member

Same as Mr randy

January 25, 2023

How Can I Feel Safe When I Have No Idea That I Have Had A Seizure Since I Now Have Mini Space Out Episodes

A MyEpilepsyTeam Member asked a question 💭
Portland, OR
A MyEpilepsyTeam Member

I get them and I have partial sz. I get little ones daily! They last seconds or longer ones and my memory is not as good but I am sort of aware.

April 28, 2023

Yall Ever Feel Like You Never Be A Good Spouse Again, After Your Ex Leaves Because Of Medical Issues?

A MyEpilepsyTeam Member asked a question 💭
Cherokee,N.C
A MyEpilepsyTeam Member

I wasn't married but I did have a wonderful girl friend who unfortunately had a fatal stroke and I haven't looked for another because I don't believe I will ever find anybody who could be as caring… read more

June 2, 2023
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