Questions & Answers

Thinking of this festive time, do you have more seizures when you are away from home? do you feel more safe with your epilepsy at home?

My husband suddenly started having grand mal seizures about 6 years ago completely out of the blue and was diagnosed with epilepsy about 6 months after his first cluster of seizures. He was young (27) fit and healthy and strong as he is a farmer, since the epilepsy began he has changed in almost every way... can anyone else relate?

Has anyone suffered side effects from having the flu jab? Has it interfered with your medication? I'm due to have my flu jab soon and am concerned.

I no longer have these, but it used to be a common occurrence. I know there are many, many types of seizures but have never found one that fits what used to happen to me. Can anyone tell me what this is??

* It lasted an entire day. From the time I woke up until I went to bed at night. Usually about 13-16 hours. Was always fine the next day
* I was always conscious.
* Never extra tired.
* No twitches. No pain or even physical discomfort of any kind.
* Most people didn't know anything… read more

Does anyone find they sometimes can't sleep properly at night then they start panicking which leads to a seizure? I'm struggling to sleep at night and worried it's going to start triggering seizures. It's only since my doctor has changed my medication. Sometimes my brain won't shut down!

I’m reaching out to the wide web as I have a million questions after reading a post on Facebook support group
Fycompa- did anyone notice a decline in cognitive function, as in you forget words and say the wrong words. The oven and iron were “Microwave” for example and mid sentence go blank. Suddenly lose track of thought?
I find I get VERY distracted and very forgetful.
Did anyone find they got internally angry too

I’m beginning to wonder if this is fycompa or symptoms of something else PLEASE… read more

I shared an article that I read on the news, on Facebook. Only 1 person shared it. I don't know if Cameron died of SUDEP or not but his family did say he had a seizure in his sleep. It makes me SO mad that NO ONE else shared this. Its like it doesn't matter. Am i just being biased? I feel like it should be shared. Not just because he is on TV, but to bring awareness to the devastation that seizures can cause. Not just death, but life disruption and anxiety and a whole list of things.

I’ve just been given this medicine for miclonic seizures....thoughts, experiences?

I might have had a goodnight but in the afternoon I still need a nap to continue who else feels like this