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Personality Changes In Spouse After He Began Having Seizures

A MyEpilepsyTeam Member asked a question 💭
Otago New zealand

My husband suddenly started having grand mal seizures about 6 years ago completely out of the blue and was diagnosed with epilepsy about 6 months after his first cluster of seizures. He was young (27) fit and healthy and strong as he is a farmer, since the epilepsy began he has changed in almost every way... can anyone else relate?

December 1, 2019
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A MyEpilepsyTeam Member

Yes, I was 29 when diagnosed and led a very fit lifestyle and stress free job and life. I was also cocky as I had always succeeded in anything I wanted to do. After my initial cluster of seizures I woke up and had lost much of my long term memory. The experiences that a “normal” 29 year old should or would have seemed elusive to me. The worst for me and those around me was that it seemed as if I didn’t care about anything anymore but it was that, I didn’t know what was important to me as a person. Bonds with family and friends had been broken. My sister was longer the person that I had grown up with but a more familiar person than most people around me. That bond broke and has never been the same. Now add into that mix drugs that effect the brain and memory. Outside of my father and my son no bond is the same. My then wife at the time seemed a complete stranger, emotions, experiences, the works. Today I know her as the mother of my son and very little else. It is completely crushing to someone to find out you don’t remember or feel the same about them. Relearning job skills, knowledge such as mathematics, reading, humbled the confident part out of me. I know this is a horrible thought for you or anyone reading this but I believe the more accepting and prepared for something like this, rather than being crushed or angry, you will be someone he can confide in and that will go a long way.

December 12, 2019
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Facts. But I had been on meds when seizure hit. About 3 months after statis, found I was allergic to keppra and switched to hyper expensive Briviact. I had had another seizure, and when they upped the dose, I got a rash of blisters in my mouth. BTW, that is a danger sign for Keppra..I would leave faucets running, forget where I put stuff, have to remember the world as it is when I woke up every morning. Started leaving myself notes after the statis. That stuff got much better. My next neuro appt., I'm going to ask her about what areas of my brain were "affected" (read, damaged" post statis seizure. In short, I do believe seizures can alter your personality, as you said, depending upon the area of the brain affected.

April 3, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , after being diagnosed with Epilepsy and depending on where the damage is , can possibly change your you personality . This also possibly counts your seizures and medications.

April 2, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member stress is one of the big ones. and stress on top of stress will do it.

December 10, 2019
A MyEpilepsyTeam Member

Seizures can change someone’s emotions and behavior . If the active part of the brain is located in around those parts of the brain , that person can act that part of the brain during or after the seizure.

Like myself , instead of after the seizure , I vocalize while in my seizure.

December 8, 2019

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