Questions & Answers

Those of you with partial seizures... What meds are you on and what side effects do you have?

I'm on Dilantin, and still having oodles and oodles of seizures every day. But the medicne side effects aren't bad. I remember KEPPRA and topamax, and will NEVER take them again because of side effects. I'm scared to try anything else, at all! Neurologist appointment in a couple of weeks, does anyone have any advice?

I'm finding that at times my brain & mouth don't work together. I know what I want to say, but can't seem to get it out.

Is anyone else sensitive to noise? I've noticed if the tv or stereo is up too loud, or if there are multiple noises...radio, Ac, people talking or traffic, I get dizzy and nauseous. I've even seen spots. I just have to get somewhere quiet.

Does anyone else ever have a seizure (not tonic clonic) in their sleep and find it hard to call back asleep?

But then sometimes during the day it can completely take your energy away?

I've been dealing with a lot of rage and anger and just general not feeling like myself. It has come to my attention that there is something called keppra rage that comes from taking keppra which is what I take for my seizures. Has anyone or is anyone also dealing with this and have you found anything to help deal with or get rid of the rage?

I had my first seizure 22 years ago. I have been on many mediction and so far no luck with being fully seizure free. I am on 1600 MG tegretol xr and 3000 MG of Keppra xr. Mood swings are horrible I was wondering if anyone knows of a way too help with those or a good way to handle them. Sometimes the smallest thing will trigger a rage. It's unbearable at times. I was also wondering does anyone ever wonder after you've been on a medication that's alters your personality and just how you feel… read more

I have given over 3 gallons. Stopped giving when I was put on medication. I missed a dose of my medicine one day and 3 days later I had a bad seizure. I am scared to do it again if it would alter even the littlest bit. I DO NOT want to have another bad one.

I heard that some types of birth control is not really good for people with epilepsy because it can affect epilepsy medication. I am currently taking toprimate daily and lorazepam as needed. I wouldn't bother with birth control but it's becoming less of a choice. My monthly cycle is pretty out of hand and has caused me to almost faint twice during two different months, nurses experienced it one of the times. My seizures are pretty well controlled WITH medication. I have had only two grandmals… read more

I just watched an eye opening report from HBO's Last Week Tonight with John Oliver. this is the link on youtube : https://www.youtube.com/watch?v=A-XlyB_QQYs In it he challenges everyone to google where they live plus "understaffed 911" which I did and found this article from the Baltimore Sun where they are actually filling the shortages in 911 staff with paramedics and police officers they pull from duty. http://www.baltimoresun.com/news/maryland/bs-md... I think we in the seizure disorder… read more

I've just taken my meds and I'm feeling dizzy I can't go to sleep because I've got College