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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Does Anyone Else Get Depressed Listening To Other Family Members Talk About Their Perfect Happy Lives When You Don’t Have Any Of It?

By A MyEpilepsyTeam Member 82 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyEpilepsyTeam Member 70 answers

What's A Common Misconception About Epilepsy?

By A MyEpilepsyTeam Member 304 answers

What Are Your Top Tips For Dealing With Epilepsy In The Heat?

By A MyEpilepsyTeam Member 130 answers
12454 questions

Has Anyone Ever Has A Seizure While Sleeping

A MyEpilepsyTeam Member asked a question 💭
Randolph Center, VT

So this has happened to a me a few times and it's the same spfeeling I get when I have them when I am awake...but since my seizers are just me passing out for anywhere between 1-45 min it's hard to tell! While I was sleeping I had the same feelings as I do when I am awake. So when I 'pass out' I get this feeling in my stomach like I'm on a roller coaster my hands and feet get tingliy and numb and then I black ou...the. I wake up when I wake up...while I'm out I can hear people around me but it… read more

A MyEpilepsyTeam Member

Never heard where you're out that long

February 2, 2016

How Come Some People Do Not Have Any Empathy Towards Those Who Struggle?

A MyEpilepsyTeam Member asked a question 💭
Salt Lake City, UT

Have you ever noticed when you ask someone who is in a position where you want to be these same people become very ignorant? When I was a young man, I was taught when you want to achieve a goal, you ask someone who has already achieved and find out how they do it. i.e. If you are unemployed, you ask some who is employed how they got their job. If you want to be an entrepreneur, you find someone who owns a business and ask how they did it. If you want to play a sport, you ask an athlete how they… read more

A MyEpilepsyTeam Member

The best way possible for anyone to go is 💯% Jesus Christ way! 😉 Always follow His commandments that go throughout the Bible! #1 best is always treat the other person as if you're being treated!

October 25, 2019

Memory Loss

A MyEpilepsyTeam Member asked a question 💭
Barton, VT

Anyone notice that their memory is not the same anymore? My best friend told me a couple weeks ago that she started a new job and when my mom mentioned it a couple days ago, I had no idea.

A MyEpilepsyTeam Member

We all struggle w/ memory loss in one way or another. Whether that's because of your epilepsy or the meds your on . We all have to find ways to remember. You can use a diarie, journal, or notebook… read more

January 11, 2016

Phantom Itches

A MyEpilepsyTeam Member asked a question 💭
Barton, VT

Does anyone else get these? I literally tear my legs apart scratching

A MyEpilepsyTeam Member

I get itches at times and it doesn’t matter where the itch is. Sometimes they are normal itches , other times it would be like the itch is coming from inside my body and it can’t get to it by just… read more

March 17, 2018

Dating Problems For People With Epilepsy

A MyEpilepsyTeam Member asked a question 💭
Shanklin, UK

I don't know if it is just me but I'm on a couple of sites and have been for sometime, as soon as I say I got epilepsy no one wants to know. It's like they are going to catch something from me or can't deal with it.
My question is has anyone else had same problem and does anyone know of any dating site for people with health problems in the UK that don't cost loads of money to join?

A MyEpilepsyTeam Member

You’re not alone I have the same issue, i’ve been years seizure free, and for some reason as soon as I mentioned my epilepsy, and even if I do say that I’ve been years seizure free. People just lose… read more

October 16, 2023

Has Anyone Else Has Complex Partial Seizures And Been Treated Badly In Emergency Rooms?

A MyEpilepsyTeam Member asked a question 💭
Arcata, CA

I have complex partial seizures and have been treated horribly in Emergency Rooms. Since my diagnosis, I've been in three different ER's having complex partial seizures and have been screamed at, laughed at, accused of "faking it," and had multiple "mental illness" jokes and suggestions thrown at me by ER nurses and doctors. They have never seen psychomotor seizures before and so they think they have the authority to degrade and harass me because of it. I'm tired of the abuse. I'm phobic about… read more

A MyEpilepsyTeam Member

I'm going through that now from my blood related family know that I no longer have money to help them spend that I have ALS and I'm a burden and my neurologist died unexpectedly I had to get a new… read more

December 16, 2018 (edited)

Why Am I Sleeping So Much?

A MyEpilepsyTeam Member asked a question 💭
Tucson, AZ

So I have a question they recently upped my dose of lamotrigine from 50mg a day to 200mg a day on top of 3000mg of keppra a day though I was already taking 3000mg of keppra, but lately I've been feeling really tired and I just sleep all day 😔 and I have no motivation to do anything. Has this happened to anyone? What should I do?

A MyEpilepsyTeam Member

I'm the same lanictal 200mg at night and 50mg in the morning with Epilem. I've been exhausted since I've been put back on Lamictal 2 days ago. It takes a while for your body to get used to it.

April 22, 2017

Facebook

A MyEpilepsyTeam Member asked a question 💭
North Hills, CA

When i first signed up with my epilepsy team i used my facebook account to login. So now i concerned, will thinks i post or questions i ask be posted on my facebook?

A MyEpilepsyTeam Member

Very helpful thank you very much

August 8, 2015

Pregnancy And Meds?

A MyEpilepsyTeam Member asked a question 💭
San Diego, CA

Hi all,

I had my first baby 6 months ago and was able to do it with no meds. Unfortunately I have had two grand mal/tonic clonic seizures since then while sleeping so now I'm taking Keppra and Lamictal. We want to have another baby sometime in the next year or two. Has anyone taken these meds while pregnant? My neurologist has said I need to be on meds for the rest of my life. :-( I'm worried about taking them while preggo...

A MyEpilepsyTeam Member

I was on lamotrigine with my first and breastfed for 18 months but not seizure free have a happy healthy 3 year old now. I am 35 weeks pregnant with my second on keppra and seizures have been much… read more

September 3, 2015

Help Identifying Seizure Type

A MyEpilepsyTeam Member asked a question 💭
Charleston, SC

Can someone explain to me what type of seizure I'm having if my right shoulder repeatedly raised and lowers multiple times for about a minute or two? Sometimes it's the right side of my back (muscle) that tenses and releases so much so that I jerk backwards. I could really use some clarification. Thanks in advance!

A MyEpilepsyTeam Member

If you are reactioning on one side then your seizures are coming from the other side. For example if your right side is on the right side then your seizures are coming from the left side. My brain surread more

April 25
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