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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Memory Loss

A MyEpilepsyTeam Member asked a question 💭
Barton, VT

Anyone notice that their memory is not the same anymore? My best friend told me a couple weeks ago that she started a new job and when my mom mentioned it a couple days ago, I had no idea.

December 8, 2015
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A MyEpilepsyTeam Member

We all struggle w/ memory loss in one way or another. Whether that's because of your epilepsy or the meds your on . We all have to find ways to remember. You can use a diarie, journal, or notebook. Phone apps like ,reminder, note, and voice memo. Anything you thing is important to remember write it do. That
S the best way to help you remember. If you know you had a seizure write that down too.

January 11, 2016
A MyEpilepsyTeam Member

Memory loss and confusion are side effects that come with some meds. I will be 52 on the 18th and it ticks me off that my memory is slipping, even though I know my stuff and continue to take my meds as usual. I can't "blame" it on my condition and could blame it on the meds, but that isn't how I am. If you do suspect it, mention it to your doctor, since that is one item listed on the "side effects". You are to talk with them about stuff like this.

December 12, 2015
A MyEpilepsyTeam Member

I have had epilepsy since my car accident when I was 24. Over the past 40 yrs with seizures I have experienced so much. Adversity to different medications, my husband (at the time) telling my neurologist I was crazy because he did not realize that I was seizing petit mal. Visual very different than the grand mal ( medical terms used at the time) .
However the memory loss is difficult to deal with. And over the years it has gotten worse. It is a reality of the seizure world that we all live with. It is caused from the medications and seizures playing havoc with the brain. My advice is to exercise your brain everyday with word games, there are techniques to help you remember different things AND I document everything using my IPhone, computer, pen & paper. Pls let me know if I can help you. Never give up- this makes us appreciate life not taking anything for granted.

December 9, 2015
A MyEpilepsyTeam Member

It also depends on where your seizures fire from, mine come from my right temporal lobe which is well known for your short term memories and other such things... so when there is damage there is doesnt help the situation...

Try not to let it get to you though, I mean there are some things that we are told that we would rather just forget... so sometimes its a good thing we forget right? :)

December 8, 2015
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member - I try my best and it ticks me off when my memory fails me. I have lived my entire life trying to be accepted as "normal" and not to use my brain damage as a "reason" for it. Unless I tell them, nobody would know and when I do mention it they act up. When I explain the deal they leave me alone.

December 13, 2015

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