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Has Anyone Got A Child That Has Had A Hemispherectomy And How Have The Results Been?
Surgery: Yes Or No?
The side effect of having surgery is bad memory, speech and others. I said no right away when my doctor told me to do it because its not 100% curable and it effects our memory very bad. But now after suffering the horrific memory lost and not being able to keep my memories, i am leaning more towards just doing the surgery. Does anyone know if our memory and speech gets worst after surgery, will it stay that way or it will get better over time? Will i be able to remember things after not having… read more
My long term memory is doing great. My short term memory is gone. I have to write down basically anything I truly need to remember. My speech has stayed the same after the surgery. One thing about… read more
Has Anyone Been Diagnosed With FND (Functional Neurological Disorder)?
I was diagnosed with FND when I was around 13 it causes several types of problems i can become unconciouse for no reason I might be unable to move a part of my body for periods of time the first I had… read more
Did Epilepsy Surgery Affect Your Artistic Abilities?
My neurologist has discussed surgical options with me and I'm I was leaving them as a last resort because it scares the crap out of me. But now I'm starting to run out of options with medications. So I have a question for those of you who have had experiences with surgery (preferably laser ablation or gamma knife). I'm an artist, and I suffer from seizures located in my right temporal lobe. Did any of you that had surgery in that area lose any artistic abilities? Thanks!
I havent had the surgery also have right temporal lobe gelastic seizures. What I have lost is an interest in reading books. I hope you dont lose the ability . that would devastate me.
Have Any Of You Been Told By Your Neurologist That You Have A Functional Disorder Without Proper Testing?
Even though you have been having various symptoms including, loss of balance, dizziness and increasing loss of thought and/or normal daily function, I have, but my Dr will not honor my request for an at home 24/48 hr EEG study to find out what is happening, because he feels it's an functional disorder and not part of my epilepsy even though 1 year ago I received a TBI after being hit by a car, to add to my epilepsy issue which I've had for 14 years.
It's dif per person, no
Has Anyone Else Been Considering The Diagnosis Of Functional Neurological Disorder? I Have Epilepsy But Also FND.
What’s interesting is the upcoming biological explanation
Problems After Surgery?
So I’ve recent attended a support group-type thing at the hospital I’m due to have my op at and people who are thinking about having the op and people who have had the op attend so questions can be asked about anything. I think it’s just caused MORE worry for me! Just wanted to know what other problems people have had during and after surgery. Things like one guy mentioned to me that chewing has become difficult for him and another issue that was raised was sight...I had a rough idea that sight… read more
So your having a part of the hippocampus removed?
Thats the surgery I was offered, has anyone mentioned about the loss of memory and the fact that what you loose may be permanently lost?
That was… read more
Does Anyone Else Have Epilepsy And Functional Seizures (PNES)?
I was diagnosed with my condition of epilepsy and have It, it's more stable than before and I am ok with that, but as for the pnes part i looked online about that, I thought maybe I did have, but… read more
Left Temporal Lob Surgery With Part Of Hippocampus Removed
Has anyone have there LTL hippocampus area removed ?
What did you feel like afterward, were you able to talk, were you dizzy etc...
How long did this all last.
I was told my seizures could jump to my rt brain once removed from lft because I have had them for so long.
@A MyEpilepsyTeam Member you are lucky. i use to have seizures every couple of hours. after the surgery i only have 1 spaceout seizure (auras) at night. that and when i am sick.
Brain Surgery
My last option is brain surgery but the thought of it terrifies me..has anyone had this that can tell me your outcome..did it work? What if any were your side affects after.
Surgery worked for me. 11 and a 1/2 years seizure free. Some side affects like memory difficulties but you come up with strategies to compensate.
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