Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Question For Women: Do Any Of You Have Catamenial Seizures? And How Do You Deal With Them?

A MyEpilepsyTeam Member asked a question 💭
San Diego, CA

On average I have 2-4 seizures every month and they usually happen within 4 days of my period or right after it. I still have them other times of the month too though. The seizures I have vary and I sometimes will have auras after (a few mins. to a couple of days).

My neurologist doesn't think they are Catamenial Seizures, but I do think my menstrual cycle has something to do with it.

Does anyone have any advice they could give me, please?

April 30, 2015
•
View reactions
A MyEpilepsyTeam Member

I do. My Neurologist has me tracking my monthly as well as my seizures, and even though it clearly shows the time frame, he is convinced that it has nothing to do with my monthly. Whatever......you know your body.

June 30, 2015
A MyEpilepsyTeam Member

Luckily a lot of my med bills and meds were written off by the hospital after my seizure was out of control and I got put into the medical coma for a couple months. The only thing that stopped mine at that point was the steroids and I gained a lot of weight and they were also very hard on my liver. My story is now in med books if you want to ask your Dr about what can help stop an uncontrolled gran mal seizure. Steroids and progetrone is what is helping me at this point. And as far as your question about how I pay for the meds. Well its rough but my husbands job pays for most everything thank GOD! Otherwise without medication I wouldn't be alive.

May 16, 2015
A MyEpilepsyTeam Member

Try the depo shot. It is every months

May 16, 2015
A MyEpilepsyTeam Member

I kept track of my seizures and period dates and showed to my neurologist, he wasn't totally convinced but that definitely helped show him my reasoning. He put me on Diamox (which has been shown to help catamenial epilepsy) to see what happened. I take it beginning on day 14 of my period and up to 5 days after my period ends. It has helped a lot.

May 13, 2015
A MyEpilepsyTeam Member

my daughter gets shots to stop her cycle and it helps,its called a deopravera shot

May 13, 2015

Related content

View All

Do You Think Being On You Period Can Trigger Your Seizures

A MyEpilepsyTeam Member asked a question 💭
TEXAS, TX

This Question Pertains To Women. Have Any Of You Been Diagnosed With Catamenial Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Boise, ID

Has Anyone Started Having Seizures When There Menstrual Started? Mine Started When I Started 17.

A MyEpilepsyTeam Member asked a question 💭
Fayetteville, NC
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in