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My Epilepsy Meds Don't Seem To Work

A MyEpilepsyTeam Member asked a question 💭
Manchester, UK

Hi
My epilepsy medication doesn't seem to be working and when I change. Well things either stay the same or get worse. I suffered from tonic clonic seizures but got that controlled and they are fine om my current medication. However I am also suffering from partial complex seizures but can't get them controlled. My consultant wants me to stay on my current medication of 1200 Zebinix 600mg Epilim 3 times a day and 50mg morning and 75mg evening of Lamotrogine for the next couple of months and if… read more

February 29, 2016
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A MyEpilepsyTeam Member

Well it's called a lumbar puncture or spinal tap. Apparently they take some of the fluid (think it's the cereebral fluid) and it can tell a hell of a lot about your body and illnesses. It tells if you have had any kind of infection that may have caused the epilepsy

March 26, 2016
A MyEpilepsyTeam Member

Yeah I get that it will take time but does she REALLY have to suggest needles in my spine (lumbar puncture) I mean come on I'm terrified of the buggers more than women are of spiders lol

March 2, 2016
A MyEpilepsyTeam Member

I've had epilepsy since I was a baby . I've been on many meds throughout my life, had surgeries, in the name of Epilepsy and my meds are still not 100% controlled . But I don't let it get to me. I know for a fact that I'm in the group of people that have a 5% chance of finding the right med combo to control them. I know how challenging it is. We just have keep faith and hope your Dr. comes with better suggestion on your next visit.

March 1, 2016
A MyEpilepsyTeam Member

I think that is refractory Epilepsy

March 1, 2016
A MyEpilepsyTeam Member

Idiopathic means that it starts from unknown reasons. My daughter has Idiopatheic Generalized Seizures. They started out of the blue.

February 29, 2016

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