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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Epilepsy Meds Don't Seem To Work

A MyEpilepsyTeam Member asked a question 💭
Manchester, UK

Hi
My epilepsy medication doesn't seem to be working and when I change. Well things either stay the same or get worse. I suffered from tonic clonic seizures but got that controlled and they are fine om my current medication. However I am also suffering from partial complex seizures but can't get them controlled. My consultant wants me to stay on my current medication of 1200 Zebinix 600mg Epilim 3 times a day and 50mg morning and 75mg evening of Lamotrogine for the next couple of months and if… read more

February 29, 2016
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A MyEpilepsyTeam Member

Well it's called a lumbar puncture or spinal tap. Apparently they take some of the fluid (think it's the cereebral fluid) and it can tell a hell of a lot about your body and illnesses. It tells if you have had any kind of infection that may have caused the epilepsy

March 26, 2016
A MyEpilepsyTeam Member

Yeah I get that it will take time but does she REALLY have to suggest needles in my spine (lumbar puncture) I mean come on I'm terrified of the buggers more than women are of spiders lol

March 2, 2016
A MyEpilepsyTeam Member

I've had epilepsy since I was a baby . I've been on many meds throughout my life, had surgeries, in the name of Epilepsy and my meds are still not 100% controlled . But I don't let it get to me. I know for a fact that I'm in the group of people that have a 5% chance of finding the right med combo to control them. I know how challenging it is. We just have keep faith and hope your Dr. comes with better suggestion on your next visit.

March 1, 2016
A MyEpilepsyTeam Member

I think that is refractory Epilepsy

March 1, 2016
A MyEpilepsyTeam Member

Idiopathic means that it starts from unknown reasons. My daughter has Idiopatheic Generalized Seizures. They started out of the blue.

February 29, 2016

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