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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Mysoline

A MyEpilepsyTeam Member asked a question 💭
Ipswich, UK

when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work

July 28, 2016
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A MyEpilepsyTeam Member

Thad,
I never was able to drive, so had to work on Bus Routes when they ran. I have 2 College Degrees, but Liberal Arts and Human Services do little good. For many years those jobs ended when the Do Not Call List was in effect. I was diagnosed with a Learning Disability in 1981.

June 18, 2023
A MyEpilepsyTeam Member

My first medication was Mysoline, and my parents couldn’t wake me up! The ER admitted me and started me on Dilantin. I did drive because I thought was under control in college. When I change to a college my seizures apparently started up. I would drive slow on freeway. I was confused which off ramp to take. I told my Neurologist at UCLA. A week later had seizure in my statistics class. I haven’t driven since then. The Neurologist said I have many seizures. It was a birth defect.

June 16, 2023
A MyEpilepsyTeam Member

They may of had you on the max dose and your Dr. probably was hoping ( or taking a gamble ) to find a medication that would control better. You should try and talk to you Dr. And tell him/her that you had better seizure control on it compared to the one your on now.

July 29, 2016
A MyEpilepsyTeam Member

I also have temporal lobe epilepsy and heard another person with it was taking Lamictal (Lamotrigine) and Keppra, which controlled them. I'm currently on them and my seizures are under control.

October 2, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , I was I the same boat. I lived near a city bus Route when I need to get to far destination. Also walked or rode my bike to area where I didn’t need the bus.
I also had close families.so if there were something planned with them I would get pick up by them.

June 18, 2023 (edited)

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