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Do Your Medication Side Effects Bother Other People?

A MyEpilepsyTeam Member asked a question 💭
Ridgecrest, CA

does any deal with family members or significant others that are more bothered by your medication side effects than you are?

August 25, 2016
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A MyEpilepsyTeam Member

My wife noticed that I'm more tired on some meds which I notice too sometimes. But the being "unsteady" I sometimes don't notice, but she has noticed when I have been unsteady sometimes on some meds.

August 26, 2016
A MyEpilepsyTeam Member

LOL I just put on " Eye of the tiger" and go for a jog while im in a keppra rage. I feel more like the Hulk though with my VNS I learned to slow my heart rate by closing my eyes and thinking of a good thought. I don't turn green unfortunately though I usually just make everyone around me really freaked out.

August 25, 2016
A MyEpilepsyTeam Member

man that keppra made me crazy. I was angry. like we use it as a verb now if any of us have a random angry moment. "listen keppra"

August 25, 2016
A MyEpilepsyTeam Member

I was taken off the keppra the moment I kicked my sister. if anyone knows my sister its one of those "YOU kicked your SISTER? what were thinking?" she's younger but it it this way...my boyfriends were afraid of her, not my dad lol.

as far as changing or reducing my meds...that's all we do. and i personally think we've finally found the right combo but my mom wants to keep dropping me down WHILE keeping me seizure free 😐 not exactly possible

August 25, 2016
A MyEpilepsyTeam Member

I am so glad that I have never needed to use Keppra.

Heather, I used to get dizzy early every morning and occaisionally if i got up too fast in the middle of the day as a side effect of a combination of my meds (each having the side effect of potential dizziness), but over time, it has gone away. Try to pretend not to have them for her sake for now until they have really gone away. The only exception to this rule is if it is serious dizziness that leads to you to fall a lot.

There are, of course, certain side effects that are a constant for certain medications (the ones they attach to the pill bottle to help you to remember them). And there are others that are just fact for all of a type of medication, like all anticonvulsants have the side effect of hampering memory recall. And the more anticonvulsants that you are on at the same time the higher the chance is that you will have more trouble with memory recall. I cannot trust my memory recall at all, but my neurologist explained to me that the last part (beyond the amount from anticonvulsants side effects) of that is because of stress. Regardless of the reason, it is hit or miss (more miss than hit) whether I will recall what I need to when I need it. And, I cannot "push to recall" because this always triggers an aura (and thus has a chance to trigger a seizure), so I take lots of notes and use them when I can.

August 25, 2016

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