Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Emotional Well-Being Epilepsy Information Epilepsy Symptoms Epilepsy Treatments Living with Epilepsy All Resources
About MyEpilepsyTeam
What is This Site Terms of Use Privacy policy
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Are The Reasons Behind Having Grand Mal Seizures ??

A MyEpilepsyTeam Member asked a question πŸ’­
Brampton, ON

I have been taking Carbamazepine since 5 years. In first 4 years the seizures were like once in a year. But now these 2 years being so terrible for me. I had 4 grand mal seizures in 2 years. Still sometimes feels like the sensation of seizures like I'm getting numb or tickling in my ears and legs will feel numbness my jaw will feel like stuck and in seconds I'm all right. Has done MRI, Sleep Deprived EEG and EEG and reason behind my seizures is still unknown. It's not genetic, no head injuries… read more

February 16, 2017
β€’
View reactions
A MyEpilepsyTeam Member

My first seizure, I was 28 years old and the doctors could not till me why. I would have 3 to 4 a day and they were grand mal Seizure. My mom said I was in the hospital when I as a baby off and on for 6 month. I don't know if that is reason why or not. no one else in my family history has had seizures. And always scared of what going to happen years head.

February 17, 2017
A MyEpilepsyTeam Member

Maybe they'll suggest a spinal tap, I heard, I'm too scared. They also don't know why I have @A MyEpilepsyTeam Member goodluck 😊

February 16, 2017
A MyEpilepsyTeam Member

Thanks everyone for sharing your views!!!
I'm chaning my neurologist now. I'm hoping for an answer otherwise I'm gonna wonder again :\
Ohhh I will find out about spinal tap Dana Marie :) I hope that will work for me!!

@A MyEpilepsyTeam Member That's the thing with me no history in family nothing!!! I'm just going on with a fear inside what is going to happen in coming years.

February 18, 2017
A MyEpilepsyTeam Member

Well I keep trying even though my epileptologist says medication will not work for me I still keep changing & hope one will work some day. I had the vns installed about 4 months ago so yet another wait & see situation. Maybe my luck will change eventually 🀞

February 16, 2017
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I know eh :( It is so frustrating. I don't know what should I do to keep them away. You cannot find a solution to a thing when you don't know what the problem is. It just shows up like "oh hi there I am a seziure going to do mess in your life" :\

February 16, 2017

Related content

View All

Absence Seizures Actually True Grand Mal Seizures?

A MyEpilepsyTeam Member asked a question πŸ’­
Rolla, MO
July 12, 2018

Do You Know The Old And New Names For All Of The Epileptic Seizure Types?

A MyEpilepsyTeam Member asked a question πŸ’­
Lakeville, MA
October 19, 2023

After Having A Gran Mal Seizure, Were You Extremely Tired And Had Little Physical Strength. I Couldn't Carry My Briefcase The Day After.

A MyEpilepsyTeam Member asked a question πŸ’­
Alpharetta,Roswell,Cumming, GA
July 4
Auras and Epilepsy
My Perspective: Things I Wish Everyone Knew About Epilepsy
5 Epilepsy Treatment Options: Surgery and More
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in