What Are The Reasons Behind Having Grand Mal Seizures ??
I have been taking Carbamazepine since 5 years. In first 4 years the seizures were like once in a year. But now these 2 years being so terrible for me. I had 4 grand mal seizures in 2 years. Still sometimes feels like the sensation of seizures like I'm getting numb or tickling in my ears and legs will feel numbness my jaw will feel like stuck and in seconds I'm all right. Has done MRI, Sleep Deprived EEG and EEG and reason behind my seizures is still unknown. It's not genetic, no head injuries⦠read more
My first seizure, I was 28 years old and the doctors could not till me why. I would have 3 to 4 a day and they were grand mal Seizure. My mom said I was in the hospital when I as a baby off and on for 6 month. I don't know if that is reason why or not. no one else in my family history has had seizures. And always scared of what going to happen years head.
Maybe they'll suggest a spinal tap, I heard, I'm too scared. They also don't know why I have @A MyEpilepsyTeam Member goodluck π
Thanks everyone for sharing your views!!!
I'm chaning my neurologist now. I'm hoping for an answer otherwise I'm gonna wonder again :\
Ohhh I will find out about spinal tap Dana Marie :) I hope that will work for me!!
@A MyEpilepsyTeam Member That's the thing with me no history in family nothing!!! I'm just going on with a fear inside what is going to happen in coming years.
Well I keep trying even though my epileptologist says medication will not work for me I still keep changing & hope one will work some day. I had the vns installed about 4 months ago so yet another wait & see situation. Maybe my luck will change eventually π€
@A MyEpilepsyTeam Member I know eh :( It is so frustrating. I don't know what should I do to keep them away. You cannot find a solution to a thing when you don't know what the problem is. It just shows up like "oh hi there I am a seziure going to do mess in your life" :\
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