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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Would Youmake The World Undestand How It Feels To Live With Epilepsy

A MyEpilepsyTeam Member asked a question 💭
Pittsburg, CA

You see people who make fun of people with grandmal seizures or use them in their pranks.
So how would you go about making them understand what its like to live with epilepsy and what its like in those moments? When i think about how i would go about i can honestly say I dont know and I dont know if i could ever make them understand because they dont walk in my shoes or anyone elses shoes with epilepsy

July 25, 2018 (edited)
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A MyEpilepsyTeam Member

You can't make people understand, they are just ignorant and refuse to listen until it happens to them or a family member, then they change their tune

July 8, 2023
A MyEpilepsyTeam Member

I say forget the world's opinion. What's that saying? Opinions are like ********, everyone has one. The World will never understand completely even though there are 50 million plus of us out of roughly 7.8 billion people worldwide, so 1.6% roughly the worlds population. Coca cola drinkers are 1.4 billion. It's your family and friends that need to be educated. In some countries all over the world they lock "us" up as being "mentally unstable"....horrible.

April 21, 2023 (edited)
A MyEpilepsyTeam Member
February 27
A MyEpilepsyTeam Member

They should realize that epileptics can be so different. The number of seizures, the types of seizures and what it’s like when they’re not having seizures. It would at least help out if people talked TO you about your personal condition instead of talking ABOUT you. Unfortunately that’s a big problem which so many of us must face.

March 12
A MyEpilepsyTeam Member

I agree with several answers. I think people cannot understand what it feels like because most people cannot even understand what they feel like themselves. Then, not even two seizures might be alike. Even if someone has many types of seizures, it is hard to tell which one is having, especially if they are unconscious in some but conscious in others. And, I agree talking about it openly is the best way to be when it is necessary and welcome. People who do not care about other people, never care to listen. They ignore everyone. But people who are sociable, interested in others, communicate well and listen well, especially care about others' well being, even if it is only their closest family and friands, those people are worth sharing experiences and knowledge with. We would have no communities, no civilization, no technology if were not for the more people caring about most people vs people who are care about no one but themselves.

June 23, 2023

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