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Discuss Your Pre-surgefy And Post-surgery Life.. Whats Changed For Better Or Worse?

A MyEpilepsyTeam Member asked a question 💭
Philadelphia, PA

Im 2yra post temporal lobe tomy (L) and Im noticing I now have vertigo (which I never had previously). I tried to do roller coasters and Was done after just 2. I used to be a roller coaster junkie pre-op, now, not so much.

September 30, 2019
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A MyEpilepsyTeam Member

Chapter 2,
After I got a grasp of all the emotional stuff I went through I do amazing. Most of what they took brain wise was scared and didn't work because of the Enchphilitis at 4.
I learned to cope without for years. I would be dead if it had not been for the surgery. The good far outweighs the negative.
I walked into the operating room having 30-40 Partial Complex seizures a day, over 5600mg of pills, no quality of life what so ever.
They totally eliminated all Partial Complex seizures. I think a lot of my issues after the surgery had to do with growing up. I did not have any coping tools to deal with life. I grew up way too protected but never did my parents or anyone else think I would live let alone make decisions for myself.
Now 24 years later I look back and I would do it all over again in a New York minute. I am completely independent I went to University late but have my Masters. Retired early butlufe is great.
I look at what I can do in oppose to my limitations are. I see the good vs the bad. We all have our moments. It was well worth it and have my driver's license. Hugs

October 6, 2019
A MyEpilepsyTeam Member

Before Sept. 1998 , I had seizures of all frequencies ( severe, moderate and mild ) .

After my brain surgery , I just had moderate and mild seizures. Today it’s still the same .

October 3, 2019
A MyEpilepsyTeam Member

You were v brave to have the surgery I know I couldn't do it Re - maths My mental maths is good I'm not one to use a calculator That part of my brain that's involved in working things out doesn't work on a day of cognitive impairment/ impaired awareness. (Partial seizures) If you asked me on that day what 2+2 was I couldn't answer It wouldn't dawn on me to find 2 fingers then another 2 & count them up !

October 3, 2019
A MyEpilepsyTeam Member

I relate better to those who've come into my life post surgery. My stepmother and stepfather seem to just accept me like I am, while my birth parents know who I was, not who I am now. The weird thing for me is not remembering what I used to be like. Those who knew me before the surgery often get these sad expressions, they see something different about me that I don't. I've figured out one thing they notice is math- apparently my math skills were much better before, I don't remember. But was it expectations? Had my surgery in what would have been my last semester in college, accounting major. Suddenly, I'm not supposed to do math- was it because that's the area where the seizures were coming from?
One weird thing for me is I always slept on my left side before surgery. Had a right temporal lobectomy, and now I sleep on my right side. If I roll over on my left, it feels like fluid builds up, I'll wake up with a headache. When I get headaches, they're on the right side, parietal lobe maybe, towards the back.

October 2, 2019 (edited)
A MyEpilepsyTeam Member

This is a though provoking story ,glad the ep is gone but learning to adjust to your new life.......

October 1, 2019

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