@A MyEpilepsyTeam Member,
The only error was they thought they were just removing the scar tissue. After they opened me up they realized part of the Hippocampus was damaged.
I thank God every day they removed the whole lobe. I signed concent forms prior to the surgery in the event something like that happened. I was having 30-40 Partisl Complex seizures a day. Plus over 5600mg of meds a day.
It saved my life and I would do it all over again. Yes I face challenges but I can talk about it. Testing has come sooo far since that time.
I have had no Partial complex since December 13 1994. On the left side genetics. Primidone controls left side. Hugs and if you want more info do let me know. Wendy

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A MyEpile...

When I had my EEG and brain mapping done , it took 8 days. Most of the reason was that they couldn’t get any big seizures for the mapping test and they had me down to no meds . My doctor came to visit me and having me choose something, like a beverage or food that I know , will trigger me to have a big seizure. After picking my poison ☠️ , I finally went into a very big convulsing seizure . When I came out of my seizure, I was surrounded by 6 or 7 hospital staffs. My Dr. came later to tell me , that I finally gave them what they needed.

Many years back . I was in my twenties . My Dr. had me do a carry along EEG.

Have they ever suggested a mobile EEG? Don’t remember the official name for it but the kind where they send you home with EEG on. Not the most enjoyable thing but better than the hospital. Also, there’s a better chance of catching the activity in a less controlled environment. Good luck hope this helps.

I had my testing done in 2003. After 2 weeks and no results being off meds, and insurance not covering any further testing. Doctors sent me home. (of course after getting back on my meds and going home, I had a seizure right away) The second time I went back it took 33 days and they finally saw me seize. They still needed to surgically place electrodes on my brain to pin point exactly where the seizures were starting to remove that area to prevent seizures. Seemed like one obstacle they wanted didn't give them enough information, and another was added on. And all of the testing to see where my speech and memory would be effected.