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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Feel About Yourself Now That You've Been Diagnosed With Epilepsy ??

A MyEpilepsyTeam Member asked a question 💭
Spartanburg, SC
October 26, 2020
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A MyEpilepsyTeam Member

I just keep moving forward eventhough i’m always dealing with weekly challenges. Things may seem hard but you need find ways to cope with life like hobbies, exercise, and having fun. I have many hobbies including: bicycle road racing, kayaking, canoeing, farm chores, skiing and snowboarding, art.

November 10, 2020
A MyEpilepsyTeam Member

I feel like a burden at times and useless with being unable to work/drive. Taking all of these medications has a sever negative effect on me mentally and causes suicidal thoughts at times. I am getting better at adjusting, expecting and dealing with my seizures though. They do not have as negative effects on me and I recover from them faster than before.

October 26, 2020
A MyEpilepsyTeam Member

Well I was born with it but was diagnosed around age 1 . I went through my ups and downs. I started to notice I was different, when starting in elementary school. Then it got harder in Jr. and Senior High school . I even spiraled downward, until I started going to an Epilepsy support group. That helped me learn how everyone is similar and different with Epilepsy. It helped me realize that I wasn’t the only one . Not too long later, I started to learn how to cope With my epilepsy.

I already knew how to do thing in alternative ways . My next step was finding the right place to move to when living on my own . A place that will make it easy getting around , besides using my family and friends. .

Today I now have my own family and I realized , that not only is Epilepsy a difficult lifestyle, but everything we have to struggle through with Epilepsy is a fact of our life.

October 26, 2020
A MyEpilepsyTeam Member

That's Why Im Enjoying This App. So Far Because I Can Connect & Learn More About How Epilepsy Has Effected Others.

October 26, 2020
A MyEpilepsyTeam Member

I started having seizures when I was 3 yrs. old. Dr got my seizures under control quickly.I don't remember being diagnosed. I had 9 years with no seizures. Then I hit puberty & all hell broke loose. During my teen years I had a lot of seizures & that really messed with my self confidence. I felt like a misfit through most of my teen years. I gradually decided that I'd better figure out how to deal with Epilepsy & get on with life. Some days, it's really hard not to be angry with the limitations & problems that go with Epilepsy. But it's worth fighting your way through. Most of the time I can be happy & content with my life

October 26, 2020

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