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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Did You Realize When You Were Developing Siezures

A MyEpilepsyTeam Member asked a question 💭
New York, NY
February 2, 2023
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A MyEpilepsyTeam Member

I have had stitches on forehead, nose and lips because of the falls from Epilepsy. Epilepsy can caused dangerous injuries so no one should undermine how much damage can be done which this disability.

February 7, 2023
A MyEpilepsyTeam Member

Hello Peggy. Jamais Vu is the closest name I could find to describe feeling like 'a stranger in a strange land'. It's a nightmare-like feeling that everything is wrong and that I don't belong anywhere, even my own home and neighborhood. It's linked to anxiety and panic. I'm taking meds that help.

May 30, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I read somewhere that you stated you'd a 'high IQ'..personally I don't see it, I don't know if possible side effects of meds are desensitisation, you've got it. Diabetes can be well controlled through diet and insulin plus visits to gp and bloods, some diabetics aren't even insulin dependent, just have to look after their diet and weight - once this is successful, they can become diabetes free.
Insulin diabetes 1 is a lifetime condition and can affect organs but the person can control it, alot of it is up to them.
To use such language as 'drop down, tongue biting types of seizure' demonstrates your lack of knowledge of epilepsies, you're only familiar with your own experience.
To say that epilepsy isn't a big deal demonstrates your lack of knowledge of epilepsies, you're only familiar with your own experience.
To say that people don't suffer with depression, anxiety and fear demonstrates your lack of knowledge of the epilepsies, you're only familiar with your own experience.
To say that meds do not have an effect on a person demonstrates your lack of knowledge, you're only familiar with your own experience.
To say that any meds taken during pregnancy do not have an effect on women demonstrates your lack of knowledge, you're only familiar with your own experience.
To say there's 'a bright' side to epilepsy demonstrates your lack of knowledge, you're only familiar with your own experience.
To even refer to people that have joined the site as they've recently been diagnosed with epilepsy as 'newbies' demonstrates your lack of empathy, compassion, caring and support.
You are living in YOUR world of epilepsy, not everyone else's, and you don't wish to hear anyone else's voice but your own so why be here?

February 6, 2023 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I saw that..don't worry, I'm always watching out for her posts to make sure she doesn't belittle anyone and what they're dealing with.
Oh @A MyEpilepsyTeam Member tell your friend to come off her anxiety meds re her diabetes, it's all in her head.
HAVE RESPECT FOR PEOPLE.

February 6, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member - I think your decision to leave is the correct one at this stage. Possibly you should set up a site on another platform to share all the bright sides of epilepsy with other like minds, sharing your story - don't forget socrates, Einstein and the other guys.
PS Deja vu is having a feeling you've been there before, being psychic is seeing something you've never seen 😉.
Best of luck on your epilepsy journey.

February 6, 2023 (edited)

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