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Cenobamate

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

Has anyone reduced their medication and been put on Cenobamate instead?

February 4, 2021
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A MyEpilepsyTeam Member

cenobamat (brand name is xcopri) is a controlled meds. it treats partial (focal onset aware) seizures. it comes in (Phone number can only be seen by the question and answer creators), and 200 mg. side effects: sleepy and tired, dizziness, double vision, headaches. tips avoid driving, operating heavy machinery, or other dangerous activities until you see how cenobamate affects you. cenobamate may slow your thinking and motor skills and may affect your vision. do not drink alcohol or take any other medicines that can make you either sleepy or dizzy while you are on cenobamate without first talking to your health care provider. serious side effects: suicidal thoughts and behavior, DRESS/multiorgan hypersensitivity, QT shortening, and cenobamate withdrawal.
there is a lot more in this link... i just got the important stuff down.
https://www.epilepsy.com/medications/cenobamate

February 4, 2021
A MyEpilepsyTeam Member

I emailed My Neurologist today about the Med. She said it has been approved and if I still want to try it She'll change My Vimpat to it.

February 24, 2021
A MyEpilepsyTeam Member

I’ve taken Xcorpi bc my dr told me it’s too new on the market to sell the generic. If that’s the same med it worked great for my seizures. The side effects can harm u if u use more then 12.5mg 1x/day. Once I went up to 50mg I noticed a huge difference in my thinking. It can make it hard to think straight & feel unconfused.

February 4, 2021
A MyEpilepsyTeam Member

Unfortunately, it's another drug... controlled substance

February 4, 2021
A MyEpilepsyTeam Member

I am thinking of trying it and want to speak to my neurologist on my next review. I am weaning off pregabalin at the moment.

May 1, 2023

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