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Is Anyone On Cenobamate And Clobazam?

A MyEpilepsyTeam Member asked a question 💭
London, UK

I've been recommended by my neurologist here in London, to ween off the Lacosamide and we introduce Cenobamate. I only use Clobazam as a emergency method to prevent prolonged auras.
Have been asked to think about it and wondered how people on Cenobamate are getting on..

March 5 (edited)
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A MyEpilepsyTeam Member

Hi. I hope you're doing ok. I'm also in the UK and I'm changing from topiramate to Cenomabate. I'm in the last 2 weeks now until I'm fully moved over. I'm experiencing tiredness. So much so that am thinking of contacting my Dr about it. I also use Clobazam for back up as I have absence seizures. 🙂

May 28
A MyEpilepsyTeam Member

My side effects were blurred vision, nausea, dizziness and constipation, but are much better, now.

March 5 (edited)
A MyEpilepsyTeam Member

I was going to take it but after reading about it there were too many side effects to deal with.

March 5
A MyEpilepsyTeam Member

I have been on Cenobamate nearly a year. Great relief after 5 months or so, when dose reached 250mg. Auras creeping back, and it has been about a year.

March 5
A MyEpilepsyTeam Member

Wow thats great. How were the side effects when you started on it?

March 5

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