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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Need Video Ideas About Something?

A MyEpilepsyTeam Member asked a question 💭
Cedar Lake, IN

i started a youtube channel about seizures. i got a couple of my live stories coming soon. i wanna do a series of each type of seizures (example is auras, simple partials (focal onset aware), grand mal (tonic clonic)). anyway... i wanna know your seizure(s)? and what it feel like?

February 8, 2021
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A MyEpilepsyTeam Member

My seizures started off when I was nine to thirty me blacking out deja vu first but as soon as I enter my late thirty, early forty I'm having them in my sleep still deja vu but sometimes black out I also stop speaking and began trying to fight my deja vu (I sometimes win and sometimes I don't) I'm glad you're going to do this people need to know the truth about what we go through with our sizures I pray this will help them look at us and our condition that we are in bless you and your success 👍💕😉🥰

February 24, 2021
A MyEpilepsyTeam Member

Hi everyone! I have epilepsy, also called temporal lobe epilepsy. I've had it since (Phone number can only be seen by the question and answer creators). I also have auras,blank stares,and I walk around during my seizures. I hope this helps.

February 11, 2021
A MyEpilepsyTeam Member

thank you for sharing...
@A MyEpilepsyTeam Member and boardmates i have auras (blank stare and sometime smells that isn't there and tingling), both simple (lip curl) and complex partials (out of body experience), and grand mals (blackouts). the thing is... there is a boatload of aura and partials than the what i explained. i am researching about each one. but the papers does not get the feels before, during, and/or after a seizure part. that is where you come in.

February 9, 2021
A MyEpilepsyTeam Member

I have had epilepsy with complex partial seizures for about 16 years now and I'm so frustrated because my life has turned upside down. I've accepted the fact that I'm sick, so I'm trying to be happy and stronger again. Let's all try getting better together. Take care and GOD BLESS!

February 8, 2021
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member i have a couple of ideas after the 'types of seizures' thing. i was thinking of different kinds of seizures (like genetics, injuries, injection, car crash, ect) and some of the treatments (like meds, alternative meds, diet, treatments, hippie/voodoo treatments, ect).

March 8, 2021

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