@A MyEpilepsyTeam Member Even if you are not scheduled for another appointment with your doctor until June, you can still use an online service (if the doctor is on a site that provides this) or call the doctor to update your doctor on what is going on with you and make a request. As I tell people all of the times, the doctors cannot read your mind, so you need to provide all of the details that you can about your condition and problems, so your doctor can use his/her knowledge to make changes. Obviously, it was easier to get in contact with doctors prior to the pandemic, but you can still leave a message for the doctor to do something with. There are a good percentage of people with Epilepsy and Seizure Disorders who with the right dosage of anticonvulsant(s) can get into a a seizure free state that lasts for decades or more. Others need some other medications to help out (like myself for anxiety and to aid sleep, though I also have Sleep Apnea and have always been a worrier).

However, you will never know if you are going to be one of the lucky ones until you talk with your neurologist and give him/her the details and request to work with.

It is only 1% of Epileptics that no medication helps to get them to seizure free state. And, depending who is in your team, it might seem like a lot more. However, I have a very large team that includes a member who has only been on Tegretol and has not had a seizure since 1966. And I have another member who ended up having going to a seizure center (which I will be doing once the pandemic is over) to be studied to provide more options for her doctor because the medications were not working to get her seizure free. The problem for the doctors was that they could not trigger a seizure. And they were reducing and removing anticonvulsants to try to trigger a seizure, until she was no longer on any anticonvulsant at all and was still seizure free. And she has been that way for years now.

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A MyEpile...

I'm afraid I'm one of the unlucky ones-,having being diagnosed in 1978 & controlled with just Tegretol ,for the last 23 I have been on many medication combos for partials

You may want to talk to you Dr. and ask if he/she can prescribe you some type of recovery med, like Ativan ( brand name ) or Lorazepam ( generic ) . The can help slow down to even stopping the myoclonic seizures.

I have only succeeded once in stopping a complex partial seizure once it had already started, and that was by stopping what I was doing (and I was up at the podium addressing 4 MA senators at a hearing for Solutionary Trains) and simply focusing on relaxing. I was a bit rattled (though I am stressed about any form of public speaking), but I managed to get my point across even though I had lost some vocabulary (like with a simple partial seizure), but I had my note card.

However, the best way to prevent seizures (before they have started) is to do something that you enjoy (to take your mind off of any thought of seizures) and help you relax. Thinking about possible seizures just increases your stress level which in turn increases your chances of having a seizure.

Besides that you should be doing what you need to for your "tool kit" (as my first neurologist called it): 6 hours sleep each night, doing what is necessary to reduce depression and increase a positive attitude and doing fun things to take your mind off of seizures and thus reduce stress.

What Happens during a Seizure
https://www.epilepsy.com/learn/about-epilepsy-b...