If you are on seizure meds dont drink at all. It should be noted on the box or information inside.

@A MyEpilepsyTeam Member I don't think that they mutate (but I also have never had brain surgery), however you can certainly add more over time. And it is possible that some of the older triggers could become less likely to trigger than in your past. Of course, if you had a long period of sleep deprivation in the past and now are getting a lot of sleep, then the "not enough sleep" trigger might still be there, but it is just not getting triggered because you are not getting enough poor sleep. The same is the case with stress levels. Each of us has a certain amount of stress that we can take (anticonvulsants and other medications might help us here), and after going beyond that level of stress, a seizure is triggered. If you are able to control your stress levels so that they never reach that level, it does not mean that the stress trigger has gone but rather that you do not have the high enough stress to trigger it.

My first neurologist had explained to me that it will not matter how much anticonvulsant dosage if I cannot try my best to keep my level of stress down. Like many other things, the amount that each individual can tolerate without triggering a seizure, level of sleep deprivation before triggering a seizure, etc.

It is for the same reason that some people can reach a seizure free state with the very first anticonvulsant that they are ever prescribed and others need the correct combination of 2 or 3 anticonvulsants to reach the seizure free state, and finally there are people who can never reach a seizure free state or can reach it for short periods until their body adjusts and the anticonvulsants is less effective, etc.

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A MyEpile...

Alcohol was never a trigger with me and I used to enjoy a glass of white wine (the tannins in red give me thumping headaches), a gin & tonic or even the odd glass of port or champagne but I can’t drink any alcohol whatsoever now as my tablet dosage is so high. Doesn’t really bother me as I only ever had a couple of drinks on a night out. Just stick to fruit juices now.

I used to have my mine caused by stress. Like thinking of the many possibilities of what could possibly occur. Also, if I did not get suffucient sleep. I always kept track of my monthly routine of my episodes. Usually the before, of, and after…would be normal occurences of maybe 4 or 5 over the few days. I did, a few times, drink morr red bull or monster drinks to get the routine out of my system.

I haven’t had a seizure in over 3 years since my surgery as well. >knock<

I'm so sorry you had what must have been very frightening experience. Also, thankful God lead you safely to that cab. God blessed all that day 🙏