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Epilepsy Centers

A MyEpilepsyTeam Member asked a question 💭
Tulsa, OK

Has anyone ever been to or had experience with an epilepsy center/hospital that specializes in that? I have an appointment with one, and I am pretty nervous about it. I am looking forward to getting some answers, but I am also nervous for what may lie ahead of me. My neurologist has recently told me that she fears my seizures are becoming "medicine resistant", and I don't have to be a doctor to know that they have been much more frequent in the past two years than they have been most of my life… read more

March 17, 2022
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , MICEP use to use Abbot Northwestern . That’s where I’ve had most of my EEGS, MRIs and my left temporal brain surgery .. Since University of Minnesota took over MINCEP , they started using Fairview Hospitals in St. Paul, MN.

I had my last EEG , MRI,and my DBS implant done at the Fairview Hospital last year.

February 16, 2023 (edited)
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A MyEpilepsyTeam Member

Just had my 2nd stay in the EMU. I was only there for 4 days. Honestly, I felt really safe knowing that I had at least one nurse outside my door. My doctor said he got a lot of information. Even though I was diagnosed at 18, I apparently have a mild form of lennox gastaut syndrome. I read, played on my phone, and colored in an adult coloring book meant to be calming. I'd recommend it, and see it as an opportunity. Just me.

March 21, 2022
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member that’s where I see my Epileptologist. MINCEP clinic

February 15, 2023
A MyEpilepsyTeam Member

My last In hospital EEG , They allowed family family visits, in between certain hours of the day.

March 30, 2022 (edited)
A MyEpilepsyTeam Member

My last day with my pediatrician Neurologist, the Dr. Refered me to an Epilepsy clinic. After getting to know my Epileptologist, and him knowing , through my mom, what my Epilepsy was like . After knowing the basics to my epilepsy, it was his turn to try and find the right path for my Epilepsy. A few appts. With my Epileptologist, the Dr. Made me an appt, with the Seizure Unit at a hospital, for a 7day in-hospital EEG.

I’ve had many EEGs in the clinics, but never a 7day EEG, at a hospital. My Dr. Told me, that I may want to bring things for self entertainment. It was my first experience, out of the 4 times, that I’ve done the in-hospital EEGS. So before my hospital experience, I pack a duffel bag, with things that I could self entertain myself. I packed, puzzle books, reading books or magazines, playing cards, and electric hand games, but today it wood be pads and smartphones with game apps ( don’t forget the chargers). They also have a tv in my room, but there is so much that I could or liked watching. Sometimes there wasn’t much of anything. that I would even bring snacks and my favorite juice or pop.

The Seizure Unit I stayed in, everyone was free to walk around and there was a leisure room. I could visit with others in the unit, they have board games, puzzles and a tv . Well I hope you have a good experience.

March 18, 2022

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