It is hard to get some people to understand what we go through living with Epilepsy. Does your wife ever go with you to your Dr. Appts ? Meaning she goes to see your Dr. With you. If not , then have her go see your doctor. She can ask him/her questions to understanding your condition.

Maybe have your wife and son go on YouTube or Tic Toc and listen to the professionals and people with Epilepsy. The will talk about their knowledge and experiences.

Honestly, being that I was always the weird one, it took almost a year to get my family to understand. They either thought I wasnt having these monsters, or thought I was faking these monsters. Had to prove to them at a EEG.

At the age of one, I was diagnosed with epilepsy. My older siblings grew up with me having this condition. Thankfully, they have both been very understanding over the years. As an EMT first responder, my brother is aware of seizures, and we discuss them frequently. In response to my sister's questions, I give her an update which brings us into a long conversation of what's going on with me.

Is your wife asking if she can accompany you to your doctor's appointment? It is often the case that a spouse wants to learn more about his or her spouse's situation when he or she asks this type of question and shows that type of interest. That's not a bad thing, it's actually a good thing. If that type of question arises, you can also ask your neurologist if there are specific pieces of information you can share with the family.

I agree, every person does take information in differently but there are some ways that they can be assisted to just show the information is "real" and it is okay that we talk about it. It is okay that they have questions and you can help them get answers. Just tossing out a few answers. This type of thing won't happen over night but showing everyone that they can get the answers needed may be a good start. Again, just my thought. Hang in there, you can do this, we're here for you my friend.

the fact is... some family/friends just don't understand or don't wanna understand. some people think that you have a different diagnosis (partly because they think e (epilepsy) are only grand mal (tonic/clonic) seizures like the tv ads). they don't understand the behind the sences work of living with e. my own brother and sister don't fully understand the process. my dad is aware that i have e... but oblivous behond that. for example, when he said 'we miss you... we need to come down and visit!' (driving takes me 2-3 hours)... he did not realize i can't drive.
in short, when you tell um you got e... some will support you fully, some will kinda support you, and some will deny you.
this is the myths and lies about epilepsy video that contribute the family/friends thinking you don't have e.
https://www.youtube.com/watch?v=XocvsaJ9TUE&amp...

I haven't been able to get my family to understand since i was diagnosed at 18 months. And to this day they still refused to.