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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Carbamazepine And Lupus

A MyEpilepsyTeam Member asked a question 💭
Albany, LA

Have any of you taken Tegretol/Carbatrol long term and later developed lupus or auto immune issues?

July 29, 2022
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A MyEpilepsyTeam Member

I have it the other way around.

January 24
A MyEpilepsyTeam Member

I have been on carbartrol for years along with clonzapam, and lacosamide.

January 16
A MyEpilepsyTeam Member

Ugh...the side effects are difficult and changed my life. The siezures have stopped for the price of the side effects 😭

January 14
A MyEpilepsyTeam Member

I know what you mean. Saw a new Dr last week. He's an Epileptologist so hoping he can help with some of problems I've had recently. He's weening me off the Carbatrol XR over the next two months. Says the Lamictal I'm taking is lowering effect of the Carbatrol. He's wanting to try Vimpat in place of it. I've heard of ut but never tried that one before. Also sent me to to a neurosurgeon to have mt VNS replaced. Not sure I'm going to. It really hasn't helped enough either.

August 7, 2022
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A MyEpilepsyTeam Member

I Appreciate you responding. So many side effects. Smh its sad

July 31, 2022

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