Our bodies change as we get older I had them all ........ I started having them when I was 6 years of age back than they didn't know what I had & the experimented on me I was a guiniepig ........I was given many different meds & some worked & some didn't......I finally got on the right med when I was married & I had just spent a week n the hospital & I had 2 seizures n one day not back to back but still we had found a neurologist that helped me the drug had just came out on the market ( Depakote) it worked but it had siteffects it caused weight gain & hair loss ....it also could damage my liver so it was very important to make sure that each visit they took labs......... Always check n from time to time with ur neurologist to make sure nothing has changed with ur brain 🧠 it is important......I hope that I have been some help .........enjoy ur day & God Bless 🌹

Yes quite a few times 5 times to be exact each time my seizures got stronger and worse

Yes when I was on life support for the first seizure I was hooked up to eeg first cause of the experience of having no oxygen to brain for awhile so to see about the function of the brain and to see about epilepsy. After a while I was told on eeg they detected while I was on life support that I had gram Mal focal and status epilepticus. It was hard to get them to stop I was in icu for 2 weeks. Then had to recover from broken ribs from cpr.
Then when I moved back to Arizona because the place was shut down they didn't have time to get records from Utah I was labeled pnes with no testing Then went to tonic clonic and gram Mal seizure and will form into status epilepticus. So it kept changing

Epilepsy is known to change over time, as the brain circuitry changes with age and/or environment (experiencing more triggers, efficacy of meds changes, etc). The brain is always changing over time,, just like the rest of the body. My seizures went from passing minor auras, to partial temporal lobe, to full temporal, and finally grand mal over the course of about 15 years (it went from auras to full TLE in a matter of 5 years). So in my case, epilepsy did and does change over a lifetime. I hope that helps explain it a little…

@A MyEpilepsyTeam Member @A MyEpilepsyTeam Member
The seizure I’ve had all my life, where I don’t lose consciousness, I get a weird feeling in my neck area and it used to mess up my speech. I didn’t even know it was a seizure until I was older. After I got an RNS my doctor told me to use the magnet whenever I had one of those feelings so I’ll touch my head with the magnet and write down the day and time. When I go see the doctors I’ll show them the list of when I had the feelings and a lot of times they do find seizure activity where I marked. The big seizures, where I do lose consciousness, started when I was 10 years old. Doctors say the head injury is what caused me to have those, even though it was 8 years prior. Sometimes I will even have a big seizure right after I have one of those feelings.

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