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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Who In Your Life Best Understands How Epilepsy Impacts You, And How Do They Support You?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
November 16, 2022
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A MyEpilepsyTeam Member

My husband, he is my rock. He explains to me what happened and if I'm in the hospital why as soon as I wake up after one. He's been dealing with them for 40 years and he's always there for me. That's ❤️

February 6, 2023
A MyEpilepsyTeam Member

I have become a stronger person, dealing with this disability, we always have to try harder, and, this makes us stronger. My ppl who support me was my Mom, and my daughter, and my 2 support cats, and my higher power. I have overcomes an addiction, while dealing with seizures, trying different meds, now, I am on the right one, Keppra. Good luck to all of you, God Bless 😍

April 19, 2023
A MyEpilepsyTeam Member

I don't have anyone in my family that have really inquired about my condition/ meds and how they effect me

January 5, 2023
A MyEpilepsyTeam Member

Has your friend ever seen you have seizures? If so then he or she somewhat understands. No one will completely understand what it’s like until they have actually been there. That’s why I titled my book the way I did. It’s not a big novel. But it gives people a general idea of what my life has been like living with epilepsy. It’s called Epilepsy a Walk in My Shoes. It was published in September of 2019. It’s on amazon, kindle and audible

April 27, 2023
A MyEpilepsyTeam Member

My husband. He has researched so much and goes to every appointment. He reminds me to calm down when I get to excited or watches me like a hawk when I’m quite. He is my cherished supporter. Also, Duke my lab. He knows when I don’t feel the best and comforts me the best he can.

April 16, 2023

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