@A MyEpilepsyTeam Member, BTW Carla you said something interesting, or at least interesting to me, in your main header about being seizure free for six months and THEN this started to happen. I find it interesting because I've now been good for over 4 months about about 30-40 days ago I started to get some migraines that are kicking my butt, the last one sent me to the ER. I know like usual the doctors say that these things don't happen but I'm still wondering if my new migraines aren't showing up because of my seizures stopping? If so then it might be the same with your chills??? My new issue actually SUCKS WORSE than my seizures and I'd gladly take my seizures back if it would make these damn migraines stop.

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A MyEpile...

@A MyEpilepsyTeam Member, Oh yeah Carla the ever so famous "cold chills", I always compare them to what I think of when people say "someone has just walked over your grave". To me they're the actual sign that I've had some very small one. Sometimes they're followed by some slight nausea and then other times it's just that eerie feeling which tells me. After my first grand my temp control got worse and worst. I always HATED cold weather but now I despise it. If I've had a night where I've had a couple of partials I wake up the next morning with the serious "colds". Most of winter I go around the house, luckily the women here both freeze too, set at 74 and even then I'm in 2-3 T-shirt and one sweatshirt. On bad days it's nothing too unusual for me to have five layers on, and I now buy my clothes to work around that. I'll have skinny T-shirts for the bottom layer, a couple of medium weight ones over that, then a medium to heavy sweatshirt, and for those monster days I have a couple of monster sweatshirts that goes on over all of that. And yes somehow I've actually gotten use to it all. LOL I barely ever get too hot in the summer and you'll often find me working in my yard when it's 95 and sunny. I know that most of my neighbors probably think that I'm crazy. LOL It's just something that you kind of grow to live with, sadly enough.

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A MyEpile...

I HATE THE NAKED IN THE SNOW SEIZURES! Completely aware with my damn teeth chattering even during The Dog Days of Summer.

Sometimes I have the same thing. For me it's like having the cold sweats.

That was one of my biggest concerns after surgery. I would get chills down my left side and I was never sure what they were. I was afraid they were seizures but an EEG showed I had no activity.