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Can You Live A Normal Life With Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Zambia

Can you have a normal life with such a problem like getting a proper job, driving and even having a partner who loves you despite your condition?
Need to know if it's possible because for me my dad can't even allow me to spend some time at the mall alone, always need to go with someone. Its like am the young boy of the house but am actually the first with 5 young brothers.

June 30, 2023 (edited)
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A MyEpilepsyTeam Member

Yes, it's all possible. There are lots of people who have it and manage to live a normal life.

June 30, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, everyone has a different version of a normal life because everyone is different. Now in regards of us with epilepsy, we have to create our own version of a normal life with the limited version. We can't have what everyone else has due to our epilepsy. So, we have to accept what we have and what's available for us. As far as driving, how controlled are your seizures? How do you respond to stress? Stress is a trigger for seizures. If you are having an aura, are you able to stay under control in traffic? That's why i don't drive. But there are other ways to get around. Such as busses or transit for those with a disability. As far as a proper job, working from home is a good start along with the right skill level. We have to look into ways to better control our seizures giving us more opportunities to prove what others think about us with epilepsy is not correct. That epilepsy doesn't have us.

June 30, 2023
A MyEpilepsyTeam Member

Yeah when I first was diagnosed and slightly less under control my mom wouldn't let me go anywhere without her and when I went with a friend she would make me wear a medical alert bracelet and I had a paraprofessional follow me around elementary school we found out a couple of years ago it actually gave me mild ptsd and social anxiety I was also 8 years old when this all happened though. But now, I'm married to a guy I'm going on 11 years with when i first met him i kept it from but eventually I told him and when I did he was like thats all? Thats your big secret? And it didnt changs anything at all, I have a full time job making more than minimum wage, I have a newer car and can drive, we also have a house and are talking about a family soon so it is possible even if its rough now it'll all work out

June 30, 2023
A MyEpilepsyTeam Member

99% of our life is normal. We just hit a bump here and there. The key is cooperation. You make adjustments to ease their fear of what might happen and they have to keep an eye on us but keep any negative, overprotective comments to themselves.

I later made a major decision for everyone. After an almost fatal accident, I wanted to protect myself and leave my family with one less thing to worry about. I had a temporal lobectomy in 2000 and have been seizure-free ever since. That wasn't just MY dream come true. Everyone in my family shows their relief with one less thing to worry about.

Jobwise, I always had the idea that I was as good as or better than the rest of the crew so I didn't let epilepsy be a factor.

June 30, 2023 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
During the first five years, no I could not live a normal life but now I can 90%. I have never driven so that is not a problem. My husband or a friend can take me to where I want to go. Now I can go in a store, doctor' office or even the ladies room by myself.
I can take care of myself at home and do the things I need to do. I am a little slower but that is okay.

July 1, 2023

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