I go to my doc , she is good with me and my visits, I see her 2 times a year, I was seeing her more often before, but my condition, became more stable, like I said, my seizures are from time to time, and we discussed the time of twice a year and is okay doing. My opinion.

@A MyEpilepsyTeam Member,. The VNS stand for Vagus Nerve Stimulation. A pacemaker like device ( the Stimulator) gets implanted behind the skin by the left chest . Wires, called Leads, are connected to the power box ( Stimulator) . The wire are brought up and twine around the Vagus Nerve of the brain. It Sends an electrical pulse through the wire to the nerve to help reduce the Seizures.

The DBS is ( Deep Brain Stimulator ), which was originally used for people with Parkinson’s disease . It was approved in the United States through the FDA ( Food and Drug Administration ) , in 2018. It sort of like the VNS. The Pacemaker like device with leads connect to it. The wire are bung to the top of the brain 🧠 and inserted deep into the core of the brain. Like the VNS it sends en electric pulse, to the brain to help reduce seizures.

The RNS ( Responsive NeuroStimulation ) is implanted directly on top of the brain. It keep track of your brainwaves, detecting for abnormal brain waves, which causes the seizures. It’s Sort of like a EEG. It goes everywhere you go. This too will send electric pulse to your brain, when it detects the abnormal brainwave.

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The epilepsy specialist I currently with has been wonderful with patient care as he is very thorough in wanting everything reviewed. We have always kept an open communication business relationship; should a question come about I will either send an email or make a phone call to the office then have a reply within 24 hours at the latest.

I’ve seen two different epileptologists and will be seeing a third one soon.

Having had this for more than 27 years, I would say seeing an epileptologist is a good first step. However, more important than that is seeing how much experience they really have.

My first epileptologist missed my diagnosis. My second epileptologist, knew what I had because he just had that much more experience with number of patients. The only reason I’m seeing a new one is because I’m testing for a third surgery and the neurosurgeon requires me to see one of their preferred epileptologists.

However, don’t be disappointed if you don’t get an immediate answer. Epilepsy isn’t a sprint, it’s a marathon.

Hopefully you find the answer you are looking for!