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Do You Feel That Everyone Thinks You're Lying About Having A Seizure When They're Not With Or Around You? Or Is This My Own Anxiety?

A MyEpilepsyTeam Member asked a question 💭
Ellenwood, GA

I feel that no one believes me when I've had a seizure and they're not with me to see it or experience with me.
I get these looks as if I'm lying.

October 11, 2023
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View reactions
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member. Bahaha 🤣. Just waiting for someone to do that and say, yep seizure, Sean ain’t moving when I pinch him.

October 13, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I tell people that if they don’t believe I’m having a seizure to pinch me their hardest. I can’t feel anything when I’m seizing so when I don’t react to their pinch I’m obviously out of it.

October 12, 2023
A MyEpilepsyTeam Member

I have never been doubted when having a seizure and they go back over 30 years

October 11, 2023
A MyEpilepsyTeam Member

Sometimes I feel that way. Especially since my mom is one that doesn’t believe you are sick until you have passed out from blood loss or a limb is missing. Seeing me have a seizure changed her tune. Luckily I haven’t had one by myself, which I would not hand well. This may or may not have helped. No one knows I am lying anyway, all they have to do is look at my tongue and the way I talk.

October 12, 2023
A MyEpilepsyTeam Member

I think they're doing what they can to hide their ignorance. Since they don't have a clue what a seizure really is or how you handle one, they want to make it look like nothing happened.

October 11, 2023

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