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Is It True That If 5 Meds Haven't Worked For You, The There's A Low Probability That Any Ever Will,?

A MyEpilepsyTeam Member asked a question 💭
Knoxville, TN

I have tried 6 meds and considered vns, which is where I first heard this notion that your chances of finding a med that works even minimally drops to 4% after having tried 5 medications for seizures. My neurologist adamantly
disagreed, but I thought 30% of people with epilepsy were considered intractable.
Thanks friends

October 24, 2023
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A MyEpilepsyTeam Member

I think that would be your call and your docs, I have gotten my meds dosage lower than prescribed but they are more stable than before, so that is my opinion here

October 26, 2023
A MyEpilepsyTeam Member

I have been on so many different medications. My doctor suggested the VNS. After a few weeks of thinking about it. I decided to get the surgery. I had the surgery this past August.
I now wear a bracelet that my doctor gave me. Now if I get an aura I swipe it over my chest where the put another magnet that is connected to my vagus nerve. That will send a charge to my brain to prevent my seizures occur. It does not stop all of my seizures. But it has prevented a lot of seizures from happening

October 24, 2023
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A MyEpilepsyTeam Member

I’ve been on 6 different meds and several med combos and still have seizures. So I had the vns device put in it didn’t work either plus it is slightly painful when it goes off. Nothing bad just annoying pain. It destroys your voice and causes lots of extra phlegm in your throat. I wouldn’t recommend it.

October 31, 2023
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A MyEpilepsyTeam Member

I'm on my 9th trial medication and have tried many combinations. Nothing works as yet. I prefer to stick to the meds I know work.

October 28, 2023
A MyEpilepsyTeam Member

This is true! I have refractory focal epilepsy and refractory basically means drug resistant epilepsy so medication doesn’t stop my seizures and it never will. I’ve tried over 8 meds and none of them have ever worked so I suggest bringing up epilepsy surgery.

October 26, 2023
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