@A MyEpilepsyTeam Member , I believe I found the site info on Facebook but didn’t click on the link for more information for a while but then I eventually did & am glad I did. I have connected with many wonderful people on here & a few don’t participate on the site anymore but a few of them I connected with outside of site & I think it was Rick who lives a couple hours away, & told me about our local Epilepsy Foundation & suggested that I call them about trying to get disability. I soon learned there’s so much our local Epilepsy Foundation can do to help us. My local Epilepsy Foundation had me call a law firm & they helped me & my disability was approved in 2022. My local Epilepsy Foundation helped me when I didn’t have any insurance & I have participated in their 4 week painting class & last year I went to their “Living With Epilepsy Conference”. I have connected with one team member who lives near me & we get together every now & then. She’s a great friend. I wish there was a better way to sort out who’s new or something. I don’t like that each time a new message is posted that all the other older posts keep getting pushed down further & further & so unless you keep scrolling & scrolling down you might not even see some of those posts. I just wish there was a better way to organize it. I try to share information to new team members about their local Epilepsy Foundation & sometimes share information about The Danny Did Foundation which allows people to apply for a grant to use to get an Epilepsy device that is listed on their website. I know some people on here get frustrated with having their seizures & sometimes I see cuss words in some posts which totally turns me off. I think the rules even note you’re not supposed to do that but I would bet more than half the people who join don’t read the rules. But overall, I enjoy the site & am grateful to have met all of you & for the ones I have connected with outside of the site. Your friend in Texas, Becky

Mentioned Users

A MyEpile...

Dear, John and Susie q I went for my SSDI application lat year.2022 and worked my tail off with no help from anyone. except my my wife making sure I made their different meetings. I expected to get SSDI and get my retirement benefits. I had worked for nearly 25 years at different junk jobs. I am now receiving. more than what had on regular SSI because of the epilepsy. YIPPEE ericthom3

Hello! I don't feel as alone. I live in rural area of NWFL panhandle. No epilepsy community closer than Pensacola, 100 miles. I enjoy the peace and quiet of my country home. Traffic is not good for me. I do travel some. If I am on vacation 10 days it takes me 10 days to recover! I am BLESSED with a positive attitude and I am thankful for many BLESSINGS! HOPE you have a great night!💤💤

Amy my doc informed me about this site. I love it a lot. I realize how grateful I am even though I cannot do things I used to in my life. 🙏🏽😊

ABSOLUTELY! I've learned so much from the stories of members here. I'm humbled by the challenges that so many face, have faced in the past, and are bravely working to resolve. I also love the "I've got your back" attitude of members toward one and all. I love being of some help too!