Working With Epilepsy
How many of you have managed to maintain your full-time jobs with epilepsy? I feel like I was raised to always work hard and ignore every problem, but it is getting hard to manage. I do not have near the issues some people have and I know it's a struggle. After almost 20 years of this, it's finally starting to take it's toll on me. Any advice in this area?
Im currently in the process of changing my career to something that offers full-time. Currently in education I can't get a teaching job that full-time.
When You Wake Up From A Seizure Alone, What Helps You? What Comforts You?
I’d like to provide support for people when they wake up alone.
What would you recommend?
Myself
Edema
I started getting swelling in my legs and feet along with numbness and sharp pains months ago, anyone have similar experiences? I've had GI issues with it all.
I had edema cause from another factor and it was something managed using compression socks following medical specialist suggestion
Does Anyone Else Have NES/ Dissociative Seizures?
I struggle with my mental health and my seizure activity doesn't show up on EEG. I have full tonic clonic seizures, I lose consciousness and seize for about 2 minutes typically. I dissociate first, You could ask me my name and I would not be able to answer. Its short bursts of dissociation almost, where I can be talking and then lose what I'm saying and the thought just shuts off entirely and then I will regain awareness after a bit, usually have multiple short dissociative episodes, sometimes… read more
@A MyEpilepsyTeam Member Thats pretty much how i feel, just disconnected from my body, unable to speak or process whats happening. I can't respond to anything or sometimes will get an unconscious… read more
Do Any Of You Guys Feel Like A Burden After Having A Seizure
I do over think things so sometimes I feel like I'm a burden on my siblings and my mom and dad because after I have a seizure I need to be with one of them or like be around one of them because my anxiety acts up especially at night They say I'm not a burden, but I still feel like one.
LAS Lost my beloved hubby to cancer at just 47 24 years ago. In just 3 months- quite a trauma for kids to go thru. But after 52 years of epilepsy I'm still fine. My kids know epilepsy will not take… read more
What Dog Breeds Or Cat Breed Are Good For Epilepsy
To be truthful none as when I looked up to having one of them they cost thousands and thousands of pounds to have and you don’t get to pick the dog they choose it for you and that’s even if you have… read more
Did Anyone Else Struggle In Math?
After much research I now realize why behavioral health would ask me how I did in school and was I good at math.I was horrible in math, and that’s a sign that something can be wrong with the development of your brain.
Not me, but I taught math for years and saw SO many people who struggled with it. A lot of my adult college students said math was a real stumbling block for them. I always tried to teach them the… read more
? I'm Not Sure How To Put It, But It's A Neutral One And A Curious One Also, This Has To Do With Our Conditions We Have, More Below
And nothing against the reply you give out, but does it seem like before you had the condition we now have the people who were in your life or came into your life or theirs, treat you the same way as before and it's not a issue with them with you having your condition you have, or when they found out they started or seemed like they treating you differently cause you have that condition you have, I'm ok with the care and concern, but I don't like to treated like extra care if you understand what… read more
The worst were my parents when I was a kid. I was diagnosed at 5 but I don't know when I realized they were talking about me. The dumb one, will need someone to care for her all her life. Will need to… read more
Has Anyone Tried Cefaly?
I had an appointment this morning any my neurologist told me about Cefaly. I have terrible migraines and its a non medication treatment- both to prevent and rescue. Im doing a little bit of research of my own along with all the information he gave me.
No. How does it work?
What Is Something You Think That Your Condition You Have Has Helped You Develope Since Having Your Condition, If Any, Just Curious?
For me I'd say my endurance I have had but is a plus and increased over the years of having my condition, I have a few other things, but that is my one that sticks out for me. What are you thoughts on the question here,?
I think that my understanding of the medical world has increased. I have also learned to be an advocate for myself. I worked in veterinary medicine for over 30+ years and that helped with… read more