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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

? I'm Not Sure How To Put It, But It's A Neutral One And A Curious One Also, This Has To Do With Our Conditions We Have, More Below

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

And nothing against the reply you give out, but does it seem like before you had the condition we now have the people who were in your life or came into your life or theirs, treat you the same way as before and it's not a issue with them with you having your condition you have, or when they found out they started or seemed like they treating you differently cause you have that condition you have, I'm ok with the care and concern, but I don't like to treated like extra care if you understand what… read more

October 4
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A MyEpilepsyTeam Member

Acceptance by Others

Being accepted is the greatest joy.
The greatest joy you could ever know.
You hid the truth for too long.
Truth, brings you spirit too aglow.

Your true gender no longer needs hiding.
Your acceptance is at fully hand.
Fully acceptance by friends and family.
That your true gender is not contraband.

So, live your life for who you really are.
You are the person you represent.
Be thankful your words of truth.
Are treated as a blessed event.

3:11 AM March 2, 2021

October 4
A MyEpilepsyTeam Member

My parents never really treated me any differently after being diagnosed. Everyone I know knows that I have epilepsy. I over share. I am not really sure how my friends feel about my epilepsy, but one friend did say they were comfortable around me because I was not so worried about my epilepsy. I really don’t think anyone treats me any differently.

October 4
A MyEpilepsyTeam Member

Everyone I can think of knows. I was always a private person so that hasn’t changed. But when I happen to see certain people they treat me differently. Which is kind of sad for them to be so ignorant. My sister always says wait till they have a brain injury or someone they know. Then they will understand. But I have to admit it stings.

October 4 (edited)
A MyEpilepsyTeam Member

Yes, some people do treat those with epilepsy differently after diagnosis. As one MyEpilepsyTeam member shared, they don't tell people about their epilepsy because they worry about stigma and being "treated like a second-class citizen." Others find that people lack compassion and understanding about the condition. However read more

Yes, some people do treat those with epilepsy differently after diagnosis. As one MyEpilepsyTeam member shared, they don't tell people about their epilepsy because they worry about stigma and being "treated like a second-class citizen." Others find that people lack compassion and understanding about the condition. However, disclosing your epilepsy diagnosis can also have benefits. According to the Epilepsy Foundation, talking openly about epilepsy in a positive way can make relationships easier and improve quality of life. Being open allows you to educate others and reduce stigma.

 This AI-generated response comes from MyEpilepsyTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Hiding Epilepsy vs. Disclosing: How and When Do You Tell Others?
October 4
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
You take care too and if you’d ever like to know anything about the Neurostimulator (RNS) let me know because I have one

October 5

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