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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

A?, Having Our Conditions And Such Etc We Have, And It's Not Our Fault But Having It, And More Below

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

With the condition of me and you have and live with, and the effects of the condition of and the effects of the meds, also as for the medical field and your doc treating you and the advice that they give, which I think is ok, do you go by all of It they give out it does your own personal gut feeling have something to do with their advice that you were given by the medical field etc? Curious about this ❓

September 22
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A MyEpilepsyTeam Member

The whole point of having a doctor is to be able to share your ailments and illnesses with them, so they can advise you how to deal with them. They have the training and experience, not me. But I do a lot of research about my health problems myself, so at least I know what questions to ask the doctor. And it’s much easier now with the internet!

September 22
A MyEpilepsyTeam Member

I'm 🤷‍♀️ trying myself to learn all that I can about Epilepsy seizures and what to do about this medical condition because it's new for me without a doubt 🤷‍♀️ and I'm just thankful 🙏 to even still be alive knowing that I was kicked in the head with steel toe boots 👢 and this is the reason why I'm suffering from Epilepsy seizures grand Mal seizures are hard dealing 🤝 with and has caused alot of pain and changes in my life within the past 10 years sad 😔 but true 🤷‍♀️

September 22
A MyEpilepsyTeam Member

I wouldn’t say gut, but I read, talk to others. Sometimes it’s bad advice sometimes it’s good.

Doctors are in hard situations the meds are only 13-15% than placebo, the psychiatric side of it isn’t their training really. So some skepticism is healthy imo.

My old dr was right i shouldn’t be on briviact but I ignored it im still on it like a twit upping the dose again. His advice was good considering the drugs aren’t very good drugs !
There’s limits to what can be done

September 22
A MyEpilepsyTeam Member

Sometimes I take the Dr.s advice . Sometimes I don’t .

September 22
A MyEpilepsyTeam Member

If your talking about seizures then I don't really talk about these with the dr but if its general health issues then it really depends on what it is.

September 22

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