I, too, get extremely anxious at the sound and approach of sirens, and I live on an emergency route in town, so they’re unavoidable. I cannot explain the why part, except to say my epilepsy followed a head injury that put me in a coma, but the only sirens I consciously remember happened after seizures and other traumas. So you’re not alone there! I’m working with my therapist on breathing techniques and EMDR to try to calm myself. I hope you are able to take advantage of the support and helpful info here, and will keep my eye out for you along the way! Best wishes…

Oh, you poor dear...I pray you have a much better year♡ Are there any social outreach programs u can belong to?

Tina, I join you in despising going to the ER.

@A MyEpilepsyTeam Member,
I hear you on that! It’s like people don’t trust me to make my own decisions when I’m around them.
I’m more than capable of making my own decisions, sometimes it takes longer to process things, and being rushed doesn’t help.

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A MyEpile...

@A MyEpilepsyTeam Member,
I agree. We do have different triggers. For me, the sirens from first responders does not necessarily set my seizures off. I’ve learned to calm down fairly quickly. But they still stress me out. From time to time. I never know when, it will trigger me.
Usually I have some kind of Aura that triggers my seizures, but Not Always. Strobing lights are a no no. So I don’t go to big concerts. I try not to travel at night either because of the car lights. Stress, Fast strobing lights and smelling things that are not there are my most common Auras.
The lights depend on speed and brightness.
Sometimes a PTSD moment will occur right after the seizure has ended but during the post iptical stage. EMS always says it’s a PNES seizure and so does the doctors in the ER.
EMS scare me more and more these days. I don’t want them around anymore.

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A MyEpile...