I've had probably 7 or 8 veegs in my life time. I'm 66 and have epilepsy since diagnosed at 5. They were all since I was 25. I only had 1 bad experience and that was with an epitologist. Since I didn't have any seizures during the veeg he told me that mine were all pseudo and I didn't have epilepsy. I told him people don't have bad seizure activity all the time unless they have epilepsy. He said i didnt have seizure activity which i knew he was lying. Never had a clear eeg in my life even as a child. I had an aunt when i was a child use my brain and did numerous eegs for her thesis to get her Masters degree which she did. She said i had an interesting brain.
I made an appt with another doctor told him my Neurologist sent me this other doctor because my eegs are just full of siezure activity and he hasn't been able to find a drug combo that worked for me. First thing he did was put me in his hospital for a veeg so he could see what my brain was doing on a daily bases. I also had a bad tonic clonic while I was in there. He said my brain was almost constantly having seizure activity. He highly suggested i get a VNS to help calm my brain by zapping it at certain intervals. I did get it and since then I have seizure activity but on my eegs just here and there. He also put me on a combo of Topamax and Lamictal and it worked well for me. Between the meds and the vns I was having only the occasional seizure.
Now my last veeg was strictly to check how my meds were working since I was on 4. Found out my newest addition when removed increased seizure activity and when she put me back on it my brain was quiet especially at night. My other meds were also doing there job except 1 didn't do anything so we stopped it. That explained why I stopped having night seizures. So that's my partial experience with VEEG. If you get blown off by the doctor go to a new doctor. I always check them on healthgrades.com Good luck!

@A MyEpilepsyTeam Member I had a quick 30min in-office eeg and the results stated “This is an abnormal EEG due to presence of left temporal sharply contoured focal slowing.” Does that mean seizure-like activity???

After that EEG I was referred to an epileptologist. I’d assume a busy epileptologist with a big case load wouldn’t take on a patient and work with them for a year and a half if they didn’t have seizures or epilepsy, correct?

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A MyEpile...

@A MyEpilepsyTeam Member I’m not sure how long I’ve had epilepsy. I started noticing the weird feelings in 2017/2018. I knew something wasn’t right, but I didn’t know what it was. I tried to get numerous doctors to help me but they all told me I was fat, needed to lose weight, and it was just anxiety. I was diagnosed with generalized epilepsy in 2022 when I had 3 tonic clonic seizures in one morning and was rushed to the ER(had one in the ER too). I had an eeg that I *thought* showed seizure like activity (it stated “ This is an abnormal EEG due to presence of left temporal sharply contoured focal slowing”) and because of that they referred me to an epileptologist. I’d assume a busy epileptologist wouldn’t take someone on if they weren’t having seizure and didn’t have epilepsy, but idk I’m still newer to this.

I’ve never had a VEEG before so I’m so nervous. I don’t want to be misdiagnosed. I had that quick 30min eeg like I said, but that’s it.

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A MyEpile...

@A MyEpilepsyTeam Member , there will be a camera in your room , watching you 24/7. If you’re going to be inpatient at a hospital, then they’ll reduce your meds everyday, by so much after the first day. They want you to have a big seizure. If they aren’t big enough they’ll keep reducing the medication.

During the visit at the hospital, they may want you to get up and walk around .some. Maybe they have and leisure room where , you can watch time play game and puzzles. Maybe even eat

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A MyEpile...

Hey there, how did your VEEG go? Were you able to have a seizure? I have an upcoming VEEG and I am trying to find out as much info as I can. Thank you, I hope it went well.