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Cenobamate

A MyEpilepsyTeam Member asked a question 💭
Brighton, UK

Anyone on this Anticonvulsant. I'm in UK might be called something different over in US. My son has just reached his last increase. 3 seizures last week during exercise, 2 of them anyway.

February 20
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A MyEpilepsyTeam Member

Christine: Cenobamate is a very effective anticonvulsant (AED). One factor about it, however, is it both raises and decreases the effectiveness of other AEDs someone may be taking, such as Tegretol and Dilantin. Here is a link to an article about Cenobamate you may read at your convenience:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC84...

Regards, Jake

Is Cenobamate the Breakthrough We Have Been Wishing for?
Is Cenobamate the Breakthrough We Have Been Wishing for?
February 20
A MyEpilepsyTeam Member

I take XCopri (brand name for it). I take 250mg at bedtime, that's my limit. It's an add on med for me. Any higher dosage causes me extreme dizziness, instability when walking, lose my balance even when standing. My seizures haven't stopped but decreased. I have low sodium levels from seizure meds, so working on getting my salt level under control. My doctor thinking hyponatremia could be a big seizure trigger for me.

February 20
A MyEpilepsyTeam Member

His Cenobamate is at 150 mg once daily. His seizures have improved although he did have 3 the week BRIVIACT stopped. He won't be reading this, he is Autistic and not remotely interested. I am his parent carer.

March 1
A MyEpilepsyTeam Member

Hi, Christine what is your son's name? He the one epilepsy. It's no biggy I've had it since age 5. What was the medication? he has reached his levels on that not working.? Take Care ericthom3

February 20
A MyEpilepsyTeam Member

Thank you, my son is on 150 mg in evening. Just hopeful for him. Neurology appt tomorrow.

February 20

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