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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Feel That Others Worry More About You Than You Do?

A MyEpilepsyTeam Member asked a question 💭
Huntington Beach, CA
March 29
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A MyEpilepsyTeam Member

Yep I have this issue too. My mom no longer wants me riding the city bus because of my epilepsy and she wants the gate code to my apartment as well as a key to the house. I have balked at that. I told her I deserve some space and privacy.
I’ve more than proven that I’m aware of what’s going on around me and I have set up things like emergency notifications with my Apple Watch if something happens and I have to go to the hospital. I think the key to getting our family members to relax is showing them that we are capable of managing our epilepsy issues. We let them know we can call for help if needed, but we don’t need to be hovered over.

April 11
A MyEpilepsyTeam Member

I worry about others. I am told by them don’t worry!

April 14
A MyEpilepsyTeam Member

I agree with you and I’ve darted seeing a therapist to deal my PTSD, which has led to me having another disorder that mimics epilepsy. She says the same thing. We talk about the fact that I’m doing all I can to set myself up so that I don’t have to lean on my mom and she’s doing all she can to get in my way.
Mind you that doesn’t stop me from doing what I need to do to maintain as much of my independence as possible, but it does make it harder.
I still think the effort is worth it because if we don’t take some kind of control over this disorder and living with it then the disorder wins and when that happens it royally sucks. Epilepsy isn’t going away. The best we can do is manage it as much as possible and hope to get ourselves into a safe, happy, seizure free (as much as possible) state of life. Parents may always hover, but we just have to show them day by day that we can manage to live happy, healthy and normal lives.

April 13
A MyEpilepsyTeam Member

Yes, it’s clear that parents can be overprotective. My parents have driven me nuts numerous times. They did not think I could go to the college/university I wanted to. So I went along with their plan first. I think their biggest problem was I was going to get lost on the campus of the university I wanted to go to originally. It has 25,000 students living on the campus. My argument was does anyone know their way around a campus completely after the first week they were there? Both of my siblings went to that university before me so how would they be any different. After the 2nd week I knew where thing’s were. Please believe in yourself, and have faith in your abilities. Peanuts 🥜

April 10
A MyEpilepsyTeam Member

yes and no, depends on the family members. mom's and dad's worry about the kids... don't matter when you are a kid all the way to an adult and if you have a disability of some sort or are normal.

March 31

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