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Losing Your Caregiver And Living Alone.

A MyEpilepsyTeam Member asked a question đź’­

Have any of you faced the challenge of losing your sole caregiver and then having to live alone? I am not there yet but I fear that inrvitibly will happen to me. As any epileptic I am trying to mentally prepare myself for a harsh reality that I am to face at some point. Any insight or thoughts on how you prevailed from dealing with grief to learning to live alone?

April 2
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A MyEpilepsyTeam Member

Dreaming, Most of my seizures have come while i have been living alone and put me in a very different way of life than what I was used to. I lost my driving privileges and just recently my position at work. All which make me feel isolated and stranded in my home. Now I live in a very small town and the resources are fairly limited for me. We have to look harder for things we need. I like to make sure I have a list of things I need from the grocery store or any other store on a piece of paper so that if I am going into town I can pick atleast one or two things off that list. I have had to rely on more than one person. It takes more effort but you can do it. Sometimes things don't work because of other peoples schedules but thats where we have to have serenity to accept the things we cannot control. I haven't read your story so I'm not exactly sure of your situation. I wish you all the strength and courage to get through this. Kevin

April 3
A MyEpilepsyTeam Member

I think it's dif per person, I live with my step son, I'm about 90 % by myself most of the time, as for the question here I was doing that for a while also, don't let it get to you, make it easier on yourself getting into a different life style and then adapt as you go along, you should figure out what you need to make it work and easier by doing so, but don't freak out about it, my opinion, hang in there and try and stay pos, you'll be ok with doing it.

April 3
A MyEpilepsyTeam Member

For me lost hubby to cancer he was only 47 I was 45. My kids were 15 & 20 so I was more concerned bout them. A big void in my life too 24 years ago. No prob with epilepsy & living alone then still had the drop down type always fine after. My kids glad my epilepsy will never take me- just another reason not to worry bout seizures so much or think its so horrible by comparison.

April 3
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , Would you want another Caregiver? If so & you don’t know where to start looking you might could contact your local Epilepsy Foundation or your doctor & ask if they can suggest places to check out. Be careful if you look on the internet at websites where individuals are trying to find a Caregiver cause you don’t really know who’s behind those posts. But if you can find a company that offers Caregivers within your price range then you might feel safer going that route. But that’s up to you. If you go to www.Google.com & type in something like “Epilepsy Foundation in .....” & then put the city & state you live in & you might find a website to click on to take you directly to their website but not all states have their own website but you might possibly find info on your local Epilepsy Foundation at www.epilepsy.com. Good luck. Your friend in Texas, Becky

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April 3

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