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Who Has Epilepsy Or Child With It But Now On 3 Meds,kreppa,tropimate,rufinamide But Kreppa Is A Low Dose So To No Seizures But Now Having Em

A MyEpilepsyTeam Member asked a question 💭
Cedar Rapids, IA

The child can’t take a nap or go to sleep rather her meds is taken because she steady having seizures for less than minute in sleep daily. And it all started when doctor recommended we go down on doses for kreppa.

April 29
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A MyEpilepsyTeam Member

I agree, it's important to keep a journal and discuss medication options with your doctor. However, it's also important to remember that everyone's case is unique, and what works for one person may not work for another. Trust the process.

Both of those medications hated me 😂

April 29
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, to answer your question it is important to know the medications your daughter is taking and what are the side effects. That way you know what is going on. She is not sleeping well because of the side effects from the meds she is taking. I used to take Keppra (The Rage) and Topiramate and it is hard to deal with all of the side effects at once. Talk to your neurologist and keep a diary on your daughter. Hope she will feel better soon.
Here is a link to read on the meds,
https://medlineplus.gov/druginfo/meds/a699059.html
https://medlineplus.gov/druginfo/meds/a697012.html
https://medlineplus.gov/druginfo/meds/a609001.html

April 29
A MyEpilepsyTeam Member

When you see the Dr. ( Neurologist / Epileptologists ) in your next appointment, let him/her know about your about the seizures starting back up. The Dr. Can then check your blood levels and posssilby increase your medication a little.

April 29
A MyEpilepsyTeam Member

What was the reason to take her keppra dose down though?

April 29
A MyEpilepsyTeam Member

Since a week or 2. But doctor plan was to gradually go down from where she started for about 2weeks. 7mL 2 weeks,5 ml 2weeks,3mL 2weeks, now 1 ml 2weeks n at this. And I think she needs to go back up on it n down on another of her meds. She just has a seizure sleep at 7:37 I caught her n stopped it

April 29

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