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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

You Ever Found Someone In Your Life That Has What You Have As For The Condition Of Yours And Become A Close Friend , And Are Still With?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

I think it's a interesting? Besides my mom that had my condition and sites like this which I appreciate everyone here and there input and feedback, I have not known anyone else say someone in school or any job coworker, etc I can recall having a similar condition of epilepsy etc I have, have you, ? I only online have i found that happen but not in person. What about you?

June 10
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A MyEpilepsyTeam Member

80% ... For seizure, yes. For real anxiety and PTSD moments, I need her Jonny on the spot. But with other things like depression, hell I can get a nice telephone operator to help with a spell.

June 19
A MyEpilepsyTeam Member

I have a close friend that I grew up with during my young years as a child . Today we live in different states but still keep in contact with each other.

When we we were growing up with each other he didn’t have Epilepsy. It wasn’t until he was about 15yrs. old , when he got diagnosed with Epilepsy. His early years with Epilepsy were his Dark Years. He went through denial ,, not believing he had Epilepsy . So he didn’t take the medication prescribed to him by the Dr. Then started to have many bad seizures, from not taking them. He started getting back on track when he started taking his meds on scheduled time.

Today he’s doing well. He’s married and has kids and we call each other often .

June 10
A MyEpilepsyTeam Member

Not really. For example, I was in the hospital for almost a month with diverticulitis and when someone starts to act like a tummy ache is the end of the world I have no patience. I know and am trying to work on being more understanding.

June 13
A MyEpilepsyTeam Member

Basically, you all are the friends that I can share my epilepsy problems with. Personally, I know a few people with epilepsy, but they are handling it in a way that I don't agree with

June 12
A MyEpilepsyTeam Member

I live in a community that has 2400 single family homes. I am so tempted to go to the neighborhood management company to publish a brief article, inquiring others to help start a neighborhood support group. With the statistic that 1 in 26 people will develop epilepsy in their lifetime, it seems there's at least one person who has this condition in our neighborhood.

June 11

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