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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Headaches

A MyEpilepsyTeam Member asked a question 💭
Pincher Creek

Does anyone have 24/7 headaches and a constant ringing-humming in the head, I've experienced this since my first seizure in 2017 and have hit my head countless times during seizures (hard). I've seen 3 neurologists and get the same lame answer- post concussion well I'm not buying into it, this is not a quality of life I was hoping for heading into retirement any one out there please throw me a rope I'm drowning here
(Email address can only be seen by MyEpilepsyTeam users)

June 13, 2024
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A MyEpilepsyTeam Member

Yes, the headaches came and I ended up having medicines that were just for the headaches. When I went in for the surgery I was on six medicines. I am now ten years seizure-free. I never give up!

June 13, 2024
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A MyEpilepsyTeam Member

My issue with taking anything over the counter is they always always make me drowsy

June 13, 2024
A MyEpilepsyTeam Member

I have headaches quite often. I’m told it’s from 3 brain surgeries. I take Tylenol. The weather doesn’t help either.

June 13, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Yes I know. I don’t know if you read my story but I had an inoperable AVM that I was born with. It also gave me horrible headaches. Apparently it was dilating and growing around my head. Which I guess contributed to the headaches. Then it ruptured. And a bunch more stuff that I won’t get into . Of course I come from a family of migraine sufferers. So I feel your pain and frustration . My brain surgeons said that I will have headaches for the rest of my life. I finally got the ok to take 1 Advil. The rest only Tylenol. I find trying to relax and take my mind off it helps. Who knows. All we can do is hope. And that’s what I do. Can’t give up. No way.

June 19, 2024
A MyEpilepsyTeam Member

It's horrible to live with Anne and so frustrating for me to be tossed from one neurologist to another like " here see what you can do with him" 😡

June 19, 2024

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