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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi Guys, Have Anyone Experienced Twitching Of Legs And Arms Just Before Falling Asleep In Conjunction With Clinic Tonic Seizures?

A MyEpilepsyTeam Member asked a question 💭
Brisbane, AU

Adam has started to have seizures a year ago, before they were just once every 2 weeks and he would have one: then he started sodium valp and when once a month is time for the seizures to come, they will be many all in a row and there will be no chance for him to return conscious from post ictal phase: we then need to go to the hospital and get him sedated
Together with this deteriorating, he is now experiencing a twitching of his legs and arms as he falls asleep. He brakes my heart seeing him… read more

July 4
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A MyEpilepsyTeam Member

Yes, I ha e twitching of my legs and arms all day long..

July 10
A MyEpilepsyTeam Member

I experience ticking and a lot of air movement out of my mouth and I tend to talk to myself a lot to get my auras in check and when I noticed this I tried to breathe out a lot and get my breath back in check sometimes I'll meditate if I notice that my brain is overstimulated because I need to get my breath down I need to get the cortisol or serotonin back in check. More oxygen to the brain is better than nothing at all and overthinking

July 7
A MyEpilepsyTeam Member

I do all the time, told my neurologist and said it's Muscle spasms and restless leg syndrome and fiber neuropathy in my legs that I was diagnosed with years ago, but more severe now than prior

July 6
A MyEpilepsyTeam Member

I have restless Right Leg, since taking XCopri for a year. Lasts a few minutes before sleep. Also, I have Right hand tapping which is a n aura. When I first started seizures, my Right Arm would shoot up. I only have focals, no tonic clonics.

July 5 (edited)
A MyEpilepsyTeam Member

Every once in awhile I may get Restless Legs and Arms Syndrome , reaction . But it’s very rare for me,.

July 5

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