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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Would You Or Have You Tried, To Explain Your Epilepsy To A Friend Or Family? What Did You Say?

A MyEpilepsyTeam Member asked a question 💭
Cherry Hill, NJ

Thank You All for the responses to my “family not understanding” Post

This question is very similar to my last one. But different.

Some people in my life think they know. I think they don’t.

August 15
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A MyEpilepsyTeam Member

Compare your Epilepsy to house Fuse Box . Your brain is the Fuse box , but reacts opposite of a regular Fuse box. In stead of shutting down , our brain wave frequencies increases , causing us to seizure.

August 15
A MyEpilepsyTeam Member

The few persons that have needed to be aware of my situation I could give them straight up of my being Epileptic. The last project was online but I did explain to the few senior quality analysts should I be giving a presentation in Zoom then suddenly go quiet for 2 to 3 seconds that would be a good sign something is happening but not to be concerned and just give me a moment.

August 18
A MyEpilepsyTeam Member

Many partials in public people are concerned till I can tell them bout my epilepsy. Like if talking to at bus stop suddenly stop. sit down wait till it passes then do reactions "Wow that was a seizure?" Many tell me of theirs or a loved ones' epilepsy. My family once saw me have frequent drop down type so know a partial not so bad. Still can't resist suggesting this or that of course.

August 16
A MyEpilepsyTeam Member

I let whoever I let them know about my condition of my epilepsy as well as I can in a simple manner and way so they can get somewhat of a idea of what I am trying to let them in on, some people get and others may not, but the main thing is I tried to let them know about what I have and what I live with in my life with, my opinion here.

August 17
A MyEpilepsyTeam Member

Randy Like that analogy to a fuse box. Always thought of mine as a short circuit of brain's electrical sys too.

August 17

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