I have drug resistant or refractory epilepsy. I have had it for 30 years this month due to a TBI. I have tried approx 7 different meds. I am also a patient advocate in Canada.
I had a healthy girl who is 24 years old now. I know my limits. The main thing I have to keep is my sleep schedule.
I have also worked.
My attitude is “ If you can’t control it, not let it control you “

@A MyEpilepsyTeam Member
I have had drug resistant epilepsy for over 30 years. I tried every medication possible but nothing works. I once had a Vagus Nerve Stimulator but now have a Neurostimulator (RNS. but still have seizures. In my 40’s I still live with my parents and they give me rides and take care of things

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A MyEpile...

It's dif per person, I am ok with the meds I am on, divaprolex and levetiracetam the gen of Keppra, they have a few side effects of but not a prob with in me taking them, my opinion

I've been on every AED for temporal lobe epilepsy, have undergone surgery on LTL twice, LFL once, plus been tested for surgery two other times but denied, 7 surgeries for my VNS, was very first patient in Atlantic Canada to have a Deep Brain Stimulator implanted for Epilepsy, plus 7 surgeries for depth electrodes. I'm up to 17 times in the OR and counting as the VNS is at the max so will need to be replaced every 3 to 4 years. The DBS will last up to 10 years so will be in the OR at least twice more for that in this lifetime.

Yes I am on Pregablin and Zonismaide and now the neurologist just added ANOTHER seizure med. You think that will work.....