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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Are Your Thoughts About Your Condition And Such Etc And How Would You Describe It In Your Own Opinion?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

It's dif per person, but when I heard of the med term for it I took it at that, and as for the seizure or fits or convulsing, etc, the list goes on with the condition, I call them seizures and could call them by the other names that they have for them, i don't think of my epilepsy by that way either, ever though it is the medical name of what I have, i myself know that, but I see it as a inconvenience to me, the names of the seizures can be I think how I see it, I don't use a few names for… read more

August 23 (edited)
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A MyEpilepsyTeam Member

I feel bad even mentioning mine after hearing what you all have been through. Mine are simple & for the most part momentary. such as heart, CTCL, breaking my neck twice causing stenosis, & seizures. I can't complain as I'm in pretty good shape. I am mobile, have my eyesight, the stenosis is a pain in the neck but I deal with it. & seizures, they are in control. You're all a good example to live by.
God's best for all of you.

August 24
A MyEpilepsyTeam Member

You know, I have no right to complain about anything. I lived 71 years in great health and going the speed of a freight train. Have kniw idea where the grand mals came from. All that changed was a family situation that was the most painful thing I’ve ever faced. Terrible pain, stress and anxiety. I’ll always believe it started this. To read what you all have lived with, well, I should be humbled and shamed to say one word. God bless you all so very much. Your lives are a testament to how suffering can speak and influence others🌺

August 24
A MyEpilepsyTeam Member

My conditions are a part of me me and always will be until the day I die even though I don’t like them. Cerebral palsy is not cerebral palsy in my book anymore. It’s my Evil Enemy (EE). Seizures are also a major problem because they wear me out as my pain does. I dream about dancing as a normal person because I will never be able to. My dad never taught me to dance. My parents never thought I would be able to do anything in life but yet I accomplished a lot and no one in my family has ever pat me on my back except me.

August 23
A MyEpilepsyTeam Member

The last time I had a seizure (last year), it felt like I needed to eat something. My stomach gave me a weird feeling. I think at that time I was low in blood. I would normally get a weird feeling that something was going to happen (mentally) so I try to prepare myself or find a place to sit down. One time (when I was on Keppra) , I was at the bus exchange and I felt one coming on so I sat down on the cement wall close to the mall. After it passed. I did what I intended to do. No side effects (besides the lose bladder.

August 23
A MyEpilepsyTeam Member

I have startle seizures which are usually only found in children. I will seize over something as simple as someone breaking a glass or a doctor flashing light in my eyes. I wear headphones and sunglasses to go out. I also have migraine induced seizures which manifest in my speech and physical abilities. I cannot use my thumbs in texting motion or typing, look over my right shoulder, or raise my arms above shoulder height or it will trigger my seizures. Mine are all from a car wreck. On the flip side I am healthy with no other ailments.

August 23

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