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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

A Curious? Do You Know Anyone Else That Has The Condition You Have?

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

I only had my mom that I knew of, and besides the people who are here on this site, but in your family, friends, work, etc, not meaning nothing negative as my? Is asking, my opinion, because have not known anyone else that I know of that has my condition I have, nobody else in life with have I met, just curious about the? I'm asking.

August 23
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A MyEpilepsyTeam Member

Our oldest born, now 29, took seizures until around 5 years-years-old, just like her mom who had seizures until close to 5. We insured that when she catches a cold that she gets cold medication and her temperature will lowered and that is what helped her to not take s seizure. When my wife stopped taking them, one of her sisters started taking them and still have been having seizures close to 50 years. They recently, within the past year, installed an Vagus nerve stimulator and that has greatly reduced her seizure rate.

September 22
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A MyEpilepsyTeam Member

Just people on this site. Glad so I can share.

August 29
A MyEpilepsyTeam Member

Out of 30+ years of epilepsy I’ve never spoke to anyone else, that I know of, who also has seizures.

August 25
A MyEpilepsyTeam Member

What a great question…
I do not, I wish I knew someone from home that I could talk to. Thankfully with Gods blessing I don’t.

August 24
A MyEpilepsyTeam Member

Never met them but a couple of my dad’s cousins have seizures.

September 23

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