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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Your Condition You Have Put You In A Awkward Situation Of Some Kind Since Being Diagnosed With Your Condition?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

It has me, I did mention the? A bit ago, but I going to redo it again, I was 6 and didn't know what I had going on with me, the weird spells I was going through, i knew my mom told of the condition that she had and was epilepsy also, i after a while kinda guessed what I had, I did after say 3/4 yrs of having them happen to me, I didn't know how to bring that up to my mom or dad, no one in my immediate family, I did get a sleeping bag for my birthday and slept on the couch, they called the police… read more

September 5
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A MyEpilepsyTeam Member

Similar awkward situations have happened to me, it sucks but it's good to know I am not alone.

September 26
A MyEpilepsyTeam Member

No, not really.

September 7
A MyEpilepsyTeam Member

Awkward situations? Oh yes! Even lost a couple of jobs and been dumped from one relationship that I thought was close to an engagement. Everything was pretty much a consequence of people being afraid in one way or another. The lost jobs worked themselves out because I fought back although I usually moved on to another job anyway, but did so having made them withdraw the negatives. I never kept my condition secret from any employer and was always hired by someone who knew everything and then someone else would show up on the scene who had an issue.
Very likely the officers who suspected you of using drugs were reacting honestly given the prevalence of seizures that result from overdoses.
I came to in an ER after a bad seizure in college with a valium iv and was furious at first... and then realized that their first logical reaction when a college student came in after a seizure would probably be to guess drug involvement and react to prevent further reaction. I had never been in that hospital and they had no records to work from... just college student who had a seizure. Probably a logical conclusion actually.

September 26
A MyEpilepsyTeam Member

Yes more than once.

September 6
A MyEpilepsyTeam Member

After the brain operation in 2017 when I was 56, I am now taking only petit (Absence) seizures. Taking these small seizures has never bothered me to the point that I wonder if I am now and was occasionally taking Psychogenic non-epileptic seizures (PNES) due to what I went through in my childhood as well as the remaining 3 Neuroepithelial cysts that started the seizures in the first place. Before the surgery, I was taking both grand mal (Tonic-clonic) seizures and Absence seizures that started in 2014, where once I had a TIA-stroke and one of the hospitals thought it was a epileptic seizure

September 6
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